Search:

Type: Posts; User: richard052018

Page 1 of 2 1 2

Search: Search took 0.01 seconds.

  1. Re: 41 Years with Wegeners - Not a Relapse after all - Squamous Cell Carcinoma

    I must say you are quite the inspiration. I hope your family realizes and appreciates how tough you are: tougher than a $2.00 steak (I hear this metaphor is popular in Texas). Many blessings to...
  2. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    It's terrible that a virus has crippled the world, leading to countless instances of financial ruin, suicide, and sickness/death itself from the virus itself. Without a vaccine this isn't going away...
  3. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    Pete, not to go off topic (although we'd all love to get away from the Wu Flu, even for a second): have you been keeping track of the RTX biosimilars? Apparently Ruxience got FDA Approval for GPA,...
  4. Replies
    9
    Views
    592

    Re: COVID 19 and Wegener's - musings

    Don't be so hard on your blabbering: it was quite entertaining (and informative)
  5. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    Masha,

    I dialed it down a little, just goggles and mask. Major Hand Sanitizer once back to the car. Hoping for the best. Take Care
  6. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    Masha,

    I got a call late Sunday night for a mandatory "ALL HANDS" call with my employer Monday AM, so I had to move the lab appointment back to Wednesday. I had to be on the call because I was...
  7. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    Masha: thanks so much for your thoughts. The plan is to go with goggles, mask (hopefully they won't think I'm robbing the joint), gloves, full skin cover, bringing a towel, clorox wipes container...
  8. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    The lab is at the rheumy office, and they are all aware of the vulnerable population they service. The protocol is very strict. My appointment is at opening time. I guess all I can do is go for it...
  9. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    I've got my labs scheduled for Monday and I'm terrified. My rheumy is following extreme protocol. No one is allowed in the waiting room (people wait in the car). They text when you can come in:...
  10. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    Let's not forget our warriors on the front lines at the Grocery Stores and Pharmacies ensuring we have the food and medicine we need. These are the folks that have to work around all the coughing...
  11. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    Masha,

    It is sad to hear (a story I hear all over) that people are not taking this seriously. For your elder neighbors, maybe they'll get it when they are gasping for air and there are no...
  12. Replies
    116
    Views
    5,564

    Re: Coronavirus and GPA

    drz


    The lack of preparedness in the US is terrifying, especially considering what's going on in "first world" nations like Italy. As for myself, I've got about 6 weeks of food/supplies (yes,...
  13. Thread: Avacopan

    by richard052018
    Replies
    15
    Views
    794

    Re: Avacopan

    Pete: I just read about this drug. My first reaction (even before telling my wife) was to see if it was mentioned on this board. It was, because of course, this is the best resource for GPA news...
  14. Replies
    8
    Views
    446

    Re: Morning Sickness (Not Pregnant)

    Appreciate the detailed response drz. I too developed dental sensitivity, but it started after I was put on Bactrim by the Cleveland Clinic. Lasted about 6 weeks. Extreme sensitivity to cold...
  15. Replies
    8
    Views
    446

    Re: Morning Sickness (Not Pregnant)

    Thanks Masha. I've developed a habit of having a single slice of buttered toast with my pred in the morning (breakfast of champions).
  16. Replies
    8
    Views
    446

    Morning Sickness (Not Pregnant)

    Does anyone else with GPA suffer from extreme nausea (including vomiting) during the morning hours with their GPA? I'm having a very rough time lately dealing with gastro issues that I'm sure would...
  17. Replies
    14
    Views
    968

    Re: Hello from Shawny

    I've heard Pred described as the devil's tic tacs. I couldn't agree more. They will certainly mess with your emotions, and as Andrew stated, the weight gain is unavoidable (I put on 35 pounds from...
  18. Replies
    278
    Views
    34,199

    Re: Transplant

    Gilders,

    Just want to let you know that I'll be thinking about you on the 19th and pulling for you. Is it possible for a close relative or friend to update the board on your progress if you are...
  19. Replies
    16
    Views
    1,271

    Re: Dry cough

    I don't have much to add medically, but I just think you're great around here and I hope you get the care you need to get rid of that cough. Blessings to you.
  20. Replies
    32
    Views
    1,696

    Re: Cold, flu or flare

    If you have any concern about Dr. Villa Forte, you need to check out who wrote the Merck Manual for GPA:
    ...
  21. Replies
    32
    Views
    1,696

    Re: Cold, flu or flare

    John: glad to hear you are feeling better, and not to hijack your thread, but it is nice to see a post from drz, and that things are improving for you as well. I read a few week back you were...
  22. Replies
    10
    Views
    1,116

    Re: Newly dx 11/28/18 and scared!

    Matt,

    If I had to guess they went with Cytoxan because man you were in serious bad shape, and it works faster than the Rituxan. I know @drz said they had to go to CTX over RTX or he wasn't going...
  23. Replies
    22
    Views
    2,248

    Re: Newly diagnosed and scared

    Back in November it looks like Vanderbilt opened a new vasculitis center. My apologies if you have already gone down this road, but even my cardiologist mentioned when he was at Vandy as a resident...
  24. Replies
    5
    Views
    1,651

    Re: Origin Story

    As for the Urine strips, the Cleveland Clinic recommends testing once a week. I test a little more than that, but this disease has turned me a little neurotic (wife is reaching her limits with me). ...
  25. Replies
    8
    Views
    710

    Re: Fatigue post RTX

    Gilders,


    Thank You for all of the info!! Best of luck to you with your upcoming transplant!! We are all pulling for you!!
Results 1 to 25 of 49
Page 1 of 2 1 2