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  1. Replies
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    Re: pberggren memorial thread

    Today, 6 years ago, my beautiful Phil flied high with his Batman wings, to spend eternity with Our Lord.


    I wrote to him:


    Sweetie,


    I can't believe it has been 6 years since you went...
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    Re: pberggren memorial thread

    Thank you, Michelle and Anne, from the bottom of my heart, for your beautiful and comforting words, and for being here all the way. I love you.
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    Re: Coping with stress on current pandemic

    Please read this one:

    https://abcnews.go.com/Health/cdc-death-report-fauci/story?id=72759172

    Dr. Fauci was the one who established the treatment protocol of ctx plus pred for weggies more then...
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    Re: Coping with stress on current pandemic

    Behaving like there is no covid - doesn't mean that it is not there. Worse - it only causes more spread of it due to not caring.

    Israel is in a huge problem now because of this kind of attitude:...
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    Re: pberggren memorial thread

    Thank you, Natty. You are very kind. I hope that you are doing well. God bless you.
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    Re: pberggren memorial thread

    Phil's father passed away couple of days ago. He was very sick in the last 3 years or so and suffered a lot.

    I was in contact with him and with Phil's mom couple of times a week on line and will...
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    Re: Wegener's and surgery

    As far as I know we need to increase the pred and take extra antibiotics.
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    Re: Happy Birthdays Thread

    Happy Birthday marta :wub:

    I hope that you are doing well and that you birthday was (yesterday ?) As awesome as you are :hug3::hug3:
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    Re: Happy Birthdays Thread

    Hi gilders :hug3: I hope you still had a joyful birthday in spite of the restrictions.

    Do I remember correctly that you got your new kidney around your birthday ?

    Can your wife switch to...
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    Re: Happy Birthdays Thread

    Happy Birthday @Pete and gilders from @pberggren1 and from me. May you have an awesome day.

    Not sure how bad is the covid at your area and how you can celebrate your day but I hope it will be...
  11. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Welcome to the forum, Gary. I think you must get second opinion from the best experts possible.

    I live in Israel but my WG dr. Consults with prof. Jayne in Addenbrook. I tag @Geoff and...
  12. Thread: Happy Birthday

    by Alysia
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    Re: Happy Birthday

    Yes, Anne, chocolate works well for me :biggrin1: cheers :hug3:

    (Thanks for your kind words... :blushing: )
  13. Thread: Happy Birthday

    by Alysia
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    Re: Happy Birthday

    I came to the forum to wish Anne a Happy Birthday on the birthdays' thread, but will use this thread now. Thanks Masha.

    Happy Birthday, dear Anne. I love you and I feel blessed to call you my...
  14. Thread: Site statistics

    by Alysia
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    Re: Site statistics

    Haha yes! By a significant number.
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    Re: Recently diagnosed with GPA

    Welcome to the family, Mandy.

    6-8 weeks since the rtx might not be enough to get its full treatment effectivity. You might feel better after 3 months, even your hearing might get better. Also,...
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    Re: Coping with stress on current pandemic

    What helps me to endure ? Only my Faith.

    I pray every morning and during the day when things are too much to bear. I also watch daily livestream Mass and also reflections on the readings which...
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    Re: Coping with stress on current pandemic

    In the last few days as the pandemic is growing in crazy numbers and the **** gov. does nothing, my WG has reacted to the stress. Eventhough I should now be "covered" by rtx and 10mg arava, while...
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    Re: Coping with stress on current pandemic

    Dear DrZ,

    Thank you for sharing your feelings. I understand and I care.

    I copy parts from post that I wrote on facebook:

    The worst thing for me during the pandemic is to find out how...
  19. Thread: Feedback needed

    by Alysia
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    Re: Feedback needed

    Will it keep our private messages from the past ?
  20. Thread: Feedback needed

    by Alysia
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    Re: Feedback needed

    Most important: maybe I couldn't comment because I didn't registered.... thinking so, when I tried to register, I couldn't recall my passward which is kept on my phone. Will we have to recall our...
  21. Thread: Feedback needed

    by Alysia
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    Re: Feedback needed

    Thank you from the bottom of my heart andrew for keeping the best weggie's home working so well and for so many years. I am forever grateful to you.

    I admit, that I am not doing well with...
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    Re: Retuxin infusion

    I sometimes have nausea after rtx. Also having diarrhea for the 10-14 after the IV (but I also have collagenous colitis). Sometimes I also get UTI after rtx. Also feeling sore all over, like after a...
  23. Re: My third anniversary of my Weg diagnosis is today.

    Thank you for sharing, DrZ, and for being here with us all the years. I "hear" your worries considering the covid19 and I understand. We can only be as careful as possible and leave the rest to the...
  24. Thread: Covid-19

    by Alysia
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    Re: Covid-19

    Shalom,

    How is Yosef doing ? And all your family ? How bad it the outbreak where you live ?
    In Israel it is bad and the curve is running high and fast.. they don't care in the **** gov. :angry:
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    Re: pberggren memorial thread

    Thank you so much, gilders and Anne. It means a lot to me.
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