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Thanks for reply Michelle. My wegs unfortunately has become active, and I've been on a roller coaster ride for several months now. This time around I believe it has affected my right eye (I've never...

Has anyone been prescribed this for wegs eye involvement?

Has anyone been prescribed this for wegs eye involvement?

Until this week, I was in remission (drug free) for a little over a year. For the past 3 weeks I've been dealing with sinus issues, and even longer than that experiencing the roving joint pain every...

RIP Trish. My deepest sympathy to her all of her loved ones.

The news of Phil's passing is shocking and very sad. My sincere condolences to Alysia and Phil's family. RIP Phil.

It truly saddens me to hear this..you will be missed Lightwarrior. My sincere condolences to her family and friends.

Hi everyone. Can anyone explain what an anion gap is and what it's associated with...the liver, kidneys, etc? I just saw this on a copy of lab results. What does low results mean? Any help is...

Yeah, similar to what I was told when I was a little girl, that it's extremely bad luck for a coyote to cross in front of your path. I'm not superstitious in my native beliefs, but owls...actually,...

You know, Sangye, going without an immune-suppresant has also crossed my mind. It's a risk, but it's definitely something to address with my rheumy. I recall in the beginning she did say I'd be on an...

Really..milk thistle extract and multi-vitamins...that's quite interesting. Thanks Rose and Michelle, glad to hear that both your levels returned to normal. Rose, where to you find/buy milk thistle...

No, actually only mtx, folate, and the usual vitamin supplements. So, I guess mtx is the only culprit, since I've been feeling fine and bloodwork results for crp, esr, etc, have all been at normal...

Thanks Phil. My rheumy called me back this evening and answered my question. She explained that aza does pose a slight risk of elevated enzymes, but it's not anywhere near as high as mtx. She did say...

Hi everyone. I've been in "medicated" remission for about a year and half now, currently on 15mg of mtx. Recently, my lab results indicated an elevation in Alk Phos (?) @ 137. I had an MRI done on my...

Hi there. I've been on mtx since Sept 2010, pill form at first, then switched to injection-type (20mg) in Nov 2010. I was also on prednisone since WG diagosis in March 2010, then began tapering about...

Wishing you all a happy New Year!

My heart goes out to you. Please have hope and reach out to family and friends for support. I will pray for you.

Such devastating news! I am truly sorry for your loss. Rest in peace Jack...you will forever be a part of us.

Such devasting news to hear, Jack. I'm so sorry. My prayers are with you.

Thanks for your reply, Elephant. That is soo awesome that you pursued and accomplished your goals, I admire that. I too really want to pursue but am afraid of relapse due to stress (balancing school...

For nurses or those in the medical field with WG, I've been wondering if you have been able to maintain your careers. Just a couple months prior to my WG diagnosis I completed prerequisites and...

Welcome Chas. Glad you found this forum...the support, information, advice, etc., that is shared here is invaluable. I was diagnosed with WG in March 2010, and like you, my hearing was affected....

Hi Nicole. I met Dr. Chang at the Long Beach Vasculitis Symposium last year, and I found her wonderful and was impressed with her...she's very personable and "listened" to me. Unfortunately, I am not...

Wishing all a Happy New Year...may we have better health in the very near future, as well as peace and happiness always.

That is absolutely wonderful news to hear!