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  1. Thread: darn nose

    by coffeelover
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    6
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    1,146

    darn nose

    Hi all! Sorry i havent been around. Sold my business and the preparation to sell, keot me hopping for months. Also my health has been pretty much the same. I feel pretty good, although i feel my...
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    Any stressors make me crash. I have learned to...

    Any stressors make me crash. I have learned to avoid as much stressful situations as possible. Hard to do with my job and the constant worry about my adult children.....but I am getting so much...
  3. I like this Cindy!

    I like this Cindy!
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    Jack! I wish you the best.

    Jack! I wish you the best.
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    Yep...worry, anxiety etc all come with the pred...

    Yep...worry, anxiety etc all come with the pred use, I think. For over a year I took some meds to help me sleep (non addictive) and that seemed to help. I also will drink a cup of chamomille tea at...
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    Good Luck Bob! Its not as scarey as it...

    Good Luck Bob! Its not as scarey as it sounds...and you know, you gotta do what you gotta do. We will be with you all the way.
    lisa
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    Blood stained crusting and nosebleeds ARE par for...

    Blood stained crusting and nosebleeds ARE par for my course. Sinus rinses and humdifiers help considerably.
    Besides a nephrologist (whatever that is?) ARe you seeing a Wegeners specialist? Or at...
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    I agree with Sangye. Getting off pred has to be...

    I agree with Sangye. Getting off pred has to be very gradual. I made the mistake of getting off, but it was only a matter of a few days and I was back up to 10 mgs. Now, I do not see an end in...
  9. Thread: New here!

    by coffeelover
    Replies
    84
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    6,821

    Welcome Angela, The Mayo is a great place to...

    Welcome Angela,

    The Mayo is a great place to get a weg/ent doctor....but it may take 3 months to get in. So try to get your doc to make that referral asap. The sooner you get help the better....
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    I also use the neil med bottles twice a day and...

    I also use the neil med bottles twice a day and maybe should/could use it more. My nose is better by doing this, but no where near perfect. I also put in a Rose Hip solution daily or twice daily...
  11. I live close to Rochester and I dont find the...

    I live close to Rochester and I dont find the snow lovely at all. Try shoveling with stenosis....talk about short of breath. Best of luck at Mayo Lisa Marie and jtausan, I hope you get your airway...
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    PHil, Wishing you well and quick!

    PHil,
    Wishing you well and quick!
  13. Replies
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    Ditto! You go girl!

    Ditto! You go girl!
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    I saw this on a news article on TV. Its a good...

    I saw this on a news article on TV. Its a good thing to share Sangye. Thanks
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    I have been on 6- 8 mg of Mexotrexate for two...

    I have been on 6- 8 mg of Mexotrexate for two years now. I also take 10 mg of pred. The oral mexotrexate made me feel ill for the night I took it and a bit into the next day. I now take...
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    Onatreetop, It sounds like you may have more...

    Onatreetop,

    It sounds like you may have more than one thing going...but it definately sounds WEGS related. Please go see a specialist soon. That breathing difficulty has me a bit scared for...
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    welcome Mitch! Yes get in touch with a...

    welcome Mitch! Yes get in touch with a Rhuematologist, preferably one who specializes in WEGs. We are here for you.
    Coffeelover
  18. Thread: Way Sick

    by coffeelover
    Replies
    177
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    11,595

    Bren, Are you going to the Mayo in Rochester...

    Bren,

    Are you going to the Mayo in Rochester MN. I would call them and tell them you need to get in sooner. Be forceful...they will do it.

    Sangye,

    So glad you are feeling better....
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    Jack, I AM THINKING OF YOU AND WISHING YOU...

    Jack,

    I AM THINKING OF YOU AND WISHING YOU THE BEST!
    lisa
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    I agree Jan! Please consult with an expert. I...

    I agree Jan! Please consult with an expert. I consult with my local ENT(who did my surgery, but is not a WEG specialist, another ENT from the Mayo in Rochester, who does specialize in WEGS, MN and...
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    But it is 40-50 degress warmer than it was a few...

    But it is 40-50 degress warmer than it was a few days ago
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    Yes...Today in Southern Minnesota it is barely 40...

    Yes...Today in Southern Minnesota it is barely 40 degrees and I have all my windows and doors open:biggrin1:
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    I do at least 20 minutes of a walk outside with...

    I do at least 20 minutes of a walk outside with dogs, or treadmill walk or indoor bike 6 days a week during these winter months. When the weather is nice I do a bit more. For example a walk in the...
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    Wishing PHil the best and a quick recovery! ...

    Wishing PHil the best and a quick recovery! Firecracker thanks for posting and I sent you an e mail for Phil. You're the best
    Lisa (coffeelover)
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    Ziggy, Its a constant struggle. I too have...

    Ziggy,

    Its a constant struggle. I too have put on weight and it seems more and more with each year that passes. But the other day I decided that I can blame the pred all I want, part of this is...
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