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Yes, I agree if Andrew is willing to do it.

I am so sorry that so many of you have doctors that give you limited time. I feel very fortunate that all of my doctors give me all the time that I need and make sure that I understand what is going...

Funny... I'm considered in remission (medically induced) but i still sweat in the daytime-mostly on my head- like serious sweat-it runs down my back!

Hi Angela. I'd have to say i agree with Pete. Personally, I had 8 rounds of CTX , then started RTX. I have had 1 dose (4weekly infusions) and feel much better. I'm now considered in medically...

I make mine with ground beef too- it's yummy. I think I'll put it in the plan for this week!

Sorry to hear you are an official Weggie, but it is good to have a definitive DX. Congrats on the pending grandson:thumbsup:

I let myself nap on a regular basis...I LOVE MY BED!!!
What I am really excited about is that my nephrologist and cardiologist has given me the ok to restart a diet that I was very successful on...

you made me laugh!!! (the original post, I mean)

I have had the light-headedness off and on for about 6 months. I get the funny feeling, then I know I need to sit down or I am going to go down (which I have done about 5 times now- and 1 time I...

I am proof that doctors will start treatment without a biopsy. In my case the biopsy would have done more harm than good had they done it. As it was the doctors ruled out everything else and felt...

Welcome Jayne!

Thanks Cindy!

Now that my broken ankle has healed I'm scheduled to resume my pulmonary rehab which involves a bunch of cardio equipment as well as free weights 3 days a week for about an hour. I"m sort of looking...

I was dx with Wegs in Feb 2013. After getting out of the hospital they told me to get a bone scan so they would have a starting point (I know that the not the right term, but you get the gist.) ...

Thanks Phil. It really threw me for a loop today. I had to make many calls and got all stressed out and was crying and yelling and then I figured out there was nothing I could do and calmed myself...

Thanks for the reply Brett. I will try to get in touch with my doc in the morning but probably wil cancel the current appt.

I am on RTX only after 8 infusions of CTX. I don't think I can take MTX.

Does anyone know if it matters if you are scheduled for 4 weekly infusions if you have to miss a week? I just found out, after having my 1st infusion last week, that my insurance company will cover...

Hi. I had my 1st RTX infusion today and it went well. I actually slept through much of it due to the benedyrl they gave me.. I was there for about 5 hours and they came and checked my bp and...

Congrats!! So happy for you!

Hi Bobbie. Welcome to the forum. I was dx a little over a year ago. I have found an abundance of information and support on this site and hope that you will too. Read thru the archives and ask...

Same here Alysia. Sometimes the symptoms are overwhelmingly WGs and a biopsy is inadvisable.

Good to hear you tolerated RTX well. After my 6 monthly infusions CTX, followed by 1 infusion 3 months later, I had a flare and had another CTX infusion at 2 months. My docs then decided we would...

What a group we are!!

I have a rheumatogist, a team of nephrologists, 2 separate pulmonologists, a neurologist, a cardiologist, an ent, a opthomologist and a primary care doc, (oh and now I have a orthopedist, since I...