What an awesome story to read Drz.....made me feel all warm and fuzzy inside lol I'm soooooo happy that you have achieved remission.
My numbers are also looking very good....Kidneys are still at...
Type: Posts; User: dunkie2202
What an awesome story to read Drz.....made me feel all warm and fuzzy inside lol I'm soooooo happy that you have achieved remission.
My numbers are also looking very good....Kidneys are still at...
Hey Kathie, you really need to be careful around others. You are immuno-suppressed and I agree with Sangye, you will catch whatever is floating around but much worse than any one else. I can no...
Great news Tommy, I had a feeling that your Weg's wasn't behaving well. Glad you found a Weg's Dr to look after you.
Hey TommyG, Sorry to here the trouble your going through. I too was dx in August, I'v had 6 infusions of cytoxin, 5 plasma exchange & 4 dialysis. I'm going onto Imuran in two weeks & I'm down to 10mg...
Hey Ron, I was put on the IV solution from the start of dx. Cytoxin & Mesna each in a 500ml bag, once a mth for six mths. My pred was at a max of 75 mg but now down to 10mg daily.
Just finished the...
Pred Head Disease Or Road Rage on Steriods
and have you found out what has caused this bleed? Good luck to you Mark you seem to be in the right place gettine the right attention :smile1: :thumbsup:
wow Terri that is one unlucky work area.........
My smile didn't work lol silly me it 1 not 3 :smile1:
lol Good on ya :smile3: On another note;
I'm off Cytoxin yay me!!!! I start Imuran on the 5th Feb 150mg. I should recieve a phone call shortly after the end of the month to have part 1 of my...
Dunkie is ok i'm in country NSW but boy has it broken my heart to see the the suffering of my fellow aussie's.
I saw my weg doctor. She is a Nephrologist. She was the one that Diagnosed me from the start and the one that did my biopsy. She is the one handling my weg's.
Sangye what your saying is basically...
Sangye, I went to the drs yesterday and my husband asked about the pain I was getting in my back. It had her stumped, my hubby asked if it was from the excess weight, she said no. I asked could it...
Hey me2,
They have been giving me 1000mg Cytoxin IV every mth and last week forgot to give me the anti nausea drug. I was lucky enough to have some Maxalon at home ( nausea tablets ) and just used...
The n whata happens if your addrenials don't kick back in??? back on pred :crying:
Hey Carol.. fellow aussie weggie here lol... Sorry I've never heard of this treatment how is it used? Not that I have a nerve problem in my feet but if it should work I wonder if it works for...
Then we need to add it Phil.........and Sangye's lol
Sangye Isn't there a blood test that can check if your adrenal gland is working? I thought I read that somewhere.
Got an appointment this morning to the GP, he had a look at my eye and said it was in the lid only and it was conjunctivitis
I don't have a lullaby but I came up with a prayer... ( SORT OF )
NOW I LAY WEGS DOWN TO SLEEP
A DISEASE THAT NONE OF US WANT TO KEEP
PLEASE KEEP THE SICKNESS AWAY FROM US
SEND IT SOMEWHERE ON...
You have a very kind heart Marta...The world would be a better place if there were more of you in it :hug3:
Ok thanks for that elephant, I will get it checked out tomorrow when I see my Doctors.
Go Sam....your off to a great start walking for an hour each day. Well done.... I've heard that Zumba is pretty intense lol. I would love to say I had the energy to try it to but my kidneys won't let...
Could you tell me exactly how your eye's have been affected please? I don't know if mine is related to Weg's or is just an infection.
My eyelids are red and the bottom one is sore plus my eye is...
Never even considered that Psyborg but its a very interesting thought....I'm wondering if the miscarriages were a symptom of another disease very close to Wegeners.