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Type: Posts; User: Alysia

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    Re: Recently diagnosed with GPA

    Welcome to the family, Mandy.

    6-8 weeks since the rtx might not be enough to get its full treatment effectivity. You might feel better after 3 months, even your hearing might get better. Also,...
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    Re: Coping with stress on current pandemic

    What helps me to endure ? Only my Faith.

    I pray every morning and during the day when things are too much to bear. I also watch daily livestream Mass and also reflections on the readings which...
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    Re: Coping with stress on current pandemic

    In the last few days as the pandemic is growing in crazy numbers and the **** gov. does nothing, my WG has reacted to the stress. Eventhough I should now be "covered" by rtx and 10mg arava, while...
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    Re: Coping with stress on current pandemic

    Dear DrZ,

    Thank you for sharing your feelings. I understand and I care.

    I copy parts from post that I wrote on facebook:

    The worst thing for me during the pandemic is to find out how...
  5. Thread: Feedback needed

    by Alysia
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    Re: Feedback needed

    Will it keep our private messages from the past ?
  6. Thread: Feedback needed

    by Alysia
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    Re: Feedback needed

    Most important: maybe I couldn't comment because I didn't registered.... thinking so, when I tried to register, I couldn't recall my passward which is kept on my phone. Will we have to recall our...
  7. Thread: Feedback needed

    by Alysia
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    Re: Feedback needed

    Thank you from the bottom of my heart andrew for keeping the best weggie's home working so well and for so many years. I am forever grateful to you.

    I admit, that I am not doing well with...
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    Re: Retuxin infusion

    I sometimes have nausea after rtx. Also having diarrhea for the 10-14 after the IV (but I also have collagenous colitis). Sometimes I also get UTI after rtx. Also feeling sore all over, like after a...
  9. Re: My third anniversary of my Weg diagnosis is today.

    Thank you for sharing, DrZ, and for being here with us all the years. I "hear" your worries considering the covid19 and I understand. We can only be as careful as possible and leave the rest to the...
  10. Thread: Covid-19

    by Alysia
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    Re: Covid-19

    Shalom,

    How is Yosef doing ? And all your family ? How bad it the outbreak where you live ?
    In Israel it is bad and the curve is running high and fast.. they don't care in the **** gov. :angry:
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    Re: pberggren memorial thread

    Thank you so much, gilders and Anne. It means a lot to me.
  12. Thread: Transplant

    by Alysia
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    Re: Transplant

    Thanks for the update, Pete, and for wearing the Bathorse Avatar as today it is also the birthday of our dear Barbara.

    As for your anemia and bowels issues, checking with a gastro dr. Is a good...
  13. Thread: Lung Flare

    by Alysia
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    Re: Lung Flare

    Hi Dorothea,

    Are you still in the hospital ? How are you doing ?

    During my first lungs flare, I was addmited to the hospital with bad coughing, non stop fever, night sweats. I never coughed...
  14. Thread: Transplant

    by Alysia
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    Re: Transplant

    How are you doing gilders ?

    Happy Birthday to your wife tomorrow :hug3:
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    Re: pberggren memorial thread

    July 7 is my beautiful Phil's birthday. "forum time", it is here already... also "heaven time"..

    I wrote to him:

    Happy Birthday in heaven, my sweet eternal love :wub:


    During those tough...
  16. Thread: Donations

    by Alysia
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    Re: Donations

    Forum time, it is my beautiful pberggren1 birthday, already in Australia, and in couple of hours in Israel too. Heaven time, I guess, is like the forum time :wub:

    So, it is with pleasure and...
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    Re: Where is Everyone?

    Hi :smile1:

    Kangaroos sounds so lovely to have around.... (I hope you don't really eat them @andrew ? They are not Kosher and are too cute)

    Here, In a near city, Haifa, the wild pigs have...
  18. Thread: Haircut

    by Alysia
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    Re: Haircut

    When the pandemic started we bought a haircut machine. After the first haircut that I did for my 2 sons they didn't want to talk with me :thumbdn: and were just happy that they need to stay at home...
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    Re: Coronavirus and GPA

    Hello, my friends,

    I've missed you and I love you.

    Sorry for not writing earlier. I've being too sick with red bloody eyes so it was not easy to be in front of the screen. And also my mind is...
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    Re: Happy Birthdays Thread

    Happy Birthday jeto. Have a blessed day. Where are you and how are you doing ? Thinking about you and praying for you.
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    Re: Happy Birthdays Thread

    Re-birthday indeed, on Easter morning, the day I was born again.

    Thank you so much Michelle and Anne. I love you.


    AND - Happy and Blessed Birthday to you dear mishb starting about now in...
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    Re: Morning Sickness (Not Pregnant)

    Imuran made me vomit like hell, 15 times in an hour, about 3 weeks after I started to take it. So I stopped.
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    Re: Happy Birthdays Thread

    Happy Birthday me2 :hug3: I hope your day is great even during those corona times... Thank you for always sharing with us so generously from your amazing experience, knowledge and wisdom. Take care...
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    Re: Coronavirus and GPA

    I think like your dr. The risk of going to get the IV is bigger then the risk for waiting for it. At least for me, at least in Israel. The problem here is that all the health care facilities and...
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    Re: Coronavirus and GPA

    I tag freakyschizogirl who got truxima. It was not good for her.
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