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I stopped taking mtx in June and went from 20mg to nothing in one week. They were hoping to move me onto azathioprine but that has been put back 2 months now so I only take pred now.

When I...

I have always enjoyed my food-sometimes too much and even though I'm tall at 5"10 have always been a little above average weight. Since taking steroids it has creeped up a bit but I have eaten like a...

Went to see the Reaumy a week or so back.. Was complaining that I have been on Methotrexate for a year now and feel no better at all.. I was on a pred reduction plan by 1mg per month and was down to...

Yeah will definitely have to do it again. We both really enjoyed it. Think Matt appreciates a bit more now what we all go through. Result!

There were 7 weggies in total I think with a few of us bringing our partners.

Was really nice to share experiences and symptoms with other people. Some of us diagnosed relatively recently and one...

Was a great meet up! Was lovely to chat to everyone.

Hope we arrange it again soon x

Is the meeting still going ahead in the 11th? Hope so...

Im currently on Mtx, 20mg per week oral... I have noticed that I itch too !! Often joke to my husband that I have fleas! (I dont by the way)...Its as if my skin is itching from inside so I can...

Yes very true... but then again I cant even have a drink at the moment cos of meds :-( probably only the "healthly" among us will be able to drink !! Not fair - last alcoholic drink I had was...

I'll be there! Are people bringing partners?

My go surgery thinks I was born yesterday. If I had a blood test done at the hospital and I ask for t
he results at the gp's I am told that they can't gain access to their systems. What rubbish!! I...

I've been on Methotrexate since June of last year and was going to my local hospital every two weeks for blood monitoring. Bit of a pain as I had to take time off work on a Friday to go. Hospital...

I get really tearful at anything!! Was speaking to my boss on the phone yesterday and started getting tearful on the phone.. Yes im very stressed out with work at the moment but to cry for no...

Ive just given up trying to reduce completly now ! "You'll find a point where you can't reduce any further" my rhumy said.... Think i'm taking her advice too literally now

Ive recently been trying to come down from 7.5 mg per day to 5mg/7.5mg on alternate days... Did 2 doses of going down to 5mg and gave up! Felt awful.. too scared now to reduce any further !

That would probably be a good idea. Thank you. I've had a look and bbc news online has a link to write comments including the URL of the article you would like to refer to. Please keep us up to date...

I could send an email to the newspaper I suppose but im probably the wrong person as I dont suffer with joint pain (thankfully) yet and wouldnt know what best advice to give them.

Hi Dee

It is very interesting to see that there are so many people with Wegs around the country, even living in the same villages. I think meeting up with other people would certianly help as no...

Hi Gwen, nice to meet you! I live in Pontypridd... Not being seen under UHW but in the Royal Glamorgan Hospital.

The articles I mentioned are linked below for you.

Bikers become blood donors...

Yes Hammy I have become a lot hairier in my avitar - perhaps thats another side effect of the Pred !! LOL

I dont know about the collective term for WG sufferers... Perhaps a group of Weggies ???

Hey simon..

Ive been on methotrexate since June 2010. Started on 15mg and now on a constant 20mg per week. I think I have been fortunate with it so far... I take mine on a Friday morning and do...

Local papers have had a few stories in there recently about people with wegs. Not really sure if I want to broadcast myself through the papers though! It is very unuasual to see the articles coming...

Hey Guys,

Finally after months of readings posts on here I have finally decided to create a post of my own!

To give my little story - I was diagnosed back in May 2010 after suddenly loosing...