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I have had something similar except that I have been sleeping and wake up. When I awake I can see and hear but not move or speak.What happens to me is actually a type of catatonic seizure and lasts...

Yes, I have been using Plaquenil for about seven years. I was diagnosed with Lupus in 1998. I am very tired, but I think that is from Imuran. No doctors seem to know how Plaquenil works, but it helps...

I do the same with the same result. I have tried to push through that tiredness and then it as if I never took the pred at all. Now I plan on an hour rest after breakfast and my pred lasts till at...

Thank you all for your input, even if it was not what I wanted to hear. I guess I will call my doctor tomorrow. Today I turned 63 and decided I would not worry over anything and concentrate on which...

Al, I've been familiar with the Spoon Collection for quite awhile as it was made up by a young woman who as I have has Lupus. As an also Weggie I must add somedays I believe we awake with "no...

A few days ago I had a line of red dots about 1/4 inch apart on my forearm. After several hours it looked as if someone had connected the dots (bleeding under the skin). Later that day it actually...

How about cinnamon? It is strong and actually an odor killer (even can kill mold).

I was supposed to attend, but physically unable. I did listen to the lectures live online. Not much new, but Dr. Seo was funny. He said since he is not a cardiologist that to him a Big Mac and fries...

I am so disappointed that I am not able to go tomorrow. I am still having difficulty walking, and everytime we lower the Prednisone all the inflammation starts back up. I gave away my tickets and...

I'm going to the Chicago Vasculitis Foundation 2012 Symposium. If you were going, what question would you ask ?

Here is the link for anyone interested: Knowledge. Community. Power. The 2012...

So happy for you! Glad you didn't hit your new nose when you fell.

I'm with you, Anne. Everyone seems to easily understand vasculitis, or it sounds familiar to them. I taught for 23 years, so to me GPA will always be grade point average. For the sake of comradery I...

If anyone is interested in going, the sooner you register the better. The price goes up after early registration, plus you will have first choice of which lectures you wish to attend. Hope to see...

Did they find it helpful? To me it seems odd that Chicago with 4 major medical school hospitals does not have a vasculitis center. I am buying tickets, but right now I am still too sick for such a...

I found more details on the Chicago Vasculitis Foundation 2012 Symposium. It seems it will be very interesting. Is anyone going?

Knowledge. Community. Power. The 2012 Vasculitis Symposium -...

Sangye, Everyone refers to high dose prednisone.....what mg is actually considered high? I know ideally none is best, but is there a safe maintenance mg? I've been on a 3 year roller coaster and...

Happy belated Birthday Nancy!!!!:biggrin1:

Al

The third listed cause for PN is usually autoimmune.Between pain and drugs I forgot to reply to my own thread weeks ago! It seems you can have an attack of Sciatica and Neuropathy at the same...

Hi Tobey
I am still not sure of the origin of your PN. My husband has had PN for years from diabetes. I also have it from vasculitis. It seems to affect us very differently and mine progressed very...

I am so behind reading on here! I've been literally down lately. I was having trouble with my left leg and started using a cane about a month ago. I have neuropathy in both legs and assumed this was...

Al, I think the more people that are diagnosed with vasculitis makes "the classic WG" less classic. I am positive MPO actually more often than I am PR3 - yet sometimes both are positive. I have lung...

These answers are great. This is the type of information you will probably never get from your doctor or on an internet search!

I was on Tramadol for about 9 months, and also had no plans of quitting. I thought it was helpful with overall pain, then I started having horrible leg pains. I went shopping and forgot to take it,...

For those of you who have had Rituxan, what is the longest time span before needing another infusion?

What body involvement do you have and did this drug take care of all your symptoms?

Are...

Al, I am 'semi-quoting' you for my question. I found this all very interesting. I take Imuran. Do you happen to know what it is doing inside me? Since so far I have diminished lung and kidney...