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    "the price of freedom is eternal vigilance"...

    "the price of freedom is eternal vigilance"
    :hug2:
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    I left my heart in San Francisco ... (and my...

    I left my heart in San Francisco ...
    (and my gall bladder in Sydney).

    I lived and worked in SFO during The Great DotCom Boom-n-Bust, 1996-2003.

    .... Counting down the seconds waiting for The...
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    News of The Pierre(42)

    I may have the opportunity to be living-n-working in Sunny San Francisco (for a non-trivial period of time) before the year is out.

    :fullofwin:

    Pointers on GP/Hospital/Specialist and contact...
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    Particle + Anti-Particle cancels each other out...

    Particle + Anti-Particle cancels each other out in a STUNNINGLY huge burst of energy. (puts an atomic bomb to shame)

    I'm thinking it's a miracle you're still around to tell the tale!
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    When I was DX'd in Sydney they had a serious...

    When I was DX'd in Sydney they had a serious cluster of cases at the same time (from memory same number of cases in Sydney in one quarter that they'd expect statistically for The Entire Nation in one...
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    Goldenseal, Astragalus, Echinacea and Spirulina...

    Goldenseal, Astragalus, Echinacea and Spirulina (and friends) are toxic to autoimmune-patients because they actually increase the activity or efficiency of your immune system (although this is...
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    VitaminC is fine to take, the only downside I'm...

    VitaminC is fine to take, the only downside I'm aware of is that truly STUPENDOUS doses (think tens of grams) will tend to have a laxative effect.

    Often the recommendation (eg to slamdunk a cold)...
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    One of my first comments after getting out of...

    One of my first comments after getting out of hospital was "it was like a real-life episode of House MD, I keep wondering where the camera crew were hiding".
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    Speaking as a patient the strongest advice I can...

    Speaking as a patient the strongest advice I can give is to read up on the medications prescribed and their side effects, prepare yourself to be on the receiving end of the results, don't take it...
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    Mood and Cognitive Changes During Systemic...

    Mood and Cognitive Changes During Systemic Corticosteroid Therapy

    "... particularly deficits in verbal or declarative memory."
    "... poor concentration ..."
    "Even severe cognitive impairment...
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    Food For Thought

    WG also-known-as GPA is an inflammatory response

    Some things that modern medical science tell us about the biological processes of inflammation and immune-response


    some foods (eg Turmeric,...
  12. Thread: M t x

    by Pierre42
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    MTX is chemically _very_ similar to folic acid,...

    MTX is chemically _very_ similar to folic acid, as a result it is a folic acid anatgonist (aka antifolate), so you *really* (really really) need to take a Folic Acid supplement when you're on MTX....
  13. Thread: Finally...

    by Pierre42
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    Congratulations! You give hope to the rest of...

    Congratulations!

    You give hope to the rest of us.
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    Activation of autoimmunity following use of...

    Activation of autoimmunity following use of immunostimulatory herbal supplements. - PubMed - NCBI

    Spirulina will stimulate your immune response, it is seriously toxic to us.

    Ditto Echinacea,...
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    Coughing up blood is never a good sign. When...

    Coughing up blood is never a good sign.

    When it happened to me (all those years ago) that explained why I'd basically felt like I had been slowly drowning for the last several weeks (I was,...
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    erm, just to be clear - I am not suggesting that...

    erm, just to be clear - I am not suggesting that azathioprine causes cancer ....

    - one of the less likely but well known side-effects of Azathioprine is an impact/degrading of your bone marrow...
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    The Ride was 100% sweat powered foot-cycles. ...

    The Ride was 100% sweat powered foot-cycles.

    There was even (at least) two penny-farthings (now there's enthusiasm for ya!)
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    Azathioprine, the necessary evil

    The eternal balancing act between dying of an incurable disease and treatments which have side-effects has taken a turn for the worse recently. :angry:

    Apparently that "slightly lower than ideal...
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    Wegeners is (in some ways) completely different...

    Wegeners is (in some ways) completely different from cancer.

    Cancer is (kinda) like an infection, in that it's (typically) localised (it starts in a particular place) so the concern is not just to...
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    how things have changed

    A few years ago I was in hospital recovering after two weeks in an induced coma due to wegeners, bleeding into my lungs, etc.

    On regaining consciousness I was so weak I couldn't lift my arm to...
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    My specialist says that 5mg of pred is "about...

    My specialist says that 5mg of pred is "about what the body produces normally".

    At that dose usually the only real problem is supposed to be "what happens when I take less, will my body pick up...
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    My specialist once mentioned to me that NSAIDs...

    My specialist once mentioned to me that NSAIDs (Non Steroidal Anti Inflammatory Drugs) should be avoided as much as possible while on Prednisolone.

    The interaction between orally administered...
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    I heard that William Posters has limited internet...

    I heard that William Posters has limited internet access from his prison cell....

    https://s-media-cache-ak0.pinimg.com/236x/56/3f/69/563f696449bed22b0d22977570539184.jpg
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    For me the hardest part of WG has been surfing...

    For me the hardest part of WG has been surfing the fringe of hypochondria. (I'm not "fine", I'm just asymptomatic)

    Learning what is normal and what is "emergency ward worthy", learning to listen...
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    Purpura - Wikipedia, the free encyclopedia...

    Purpura - Wikipedia, the free encyclopedia

    You might call it "a rash" but with Wegeners it's basically subcutaneous bleeding because your flare has used up all of your platelets (from savaging...
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