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Thanks so much for the encouragement! I never know what to ask! The only other person I ever saw with it ended up with an open cavity where her nose was, then she died of lung/kidney complications....

Thanks so much! Had a headache when I posted so I quit part way. I'm Ann. Have asked about something other than MTX "since your disease isn't that bad we'll wait and see". Really don't have much...

Diagnosed early 2014, been on methotrexate only (other than meds for other conditions) since. ANCA negative, sinus/eye/tear duct involved. 53 yr old female, at least my kids are grownups. Can't...