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Type: Posts; User: MINDYB77

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    Re: Starting Methotrexate

    She is not comfortable with using rituximab at this point because I have had several lung infections over the last several months. I was bummed to hear this, but I understand her reasoning. I can be...
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    Starting Methotrexate

    I am finally starting treatment in about 2 weeks. Dr. Villa Forte wants to start with Mtx and Prednisone. I have a couple of questions. What is the time frame for remission with this treatment...
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    Re: Feeling frustrated.....

    That is great info! Thank you! I feel confident that the pulmo at CC is getting me straightened out. I was just very disappointed that it felt like Dr Villa Forte had not really even looked at my...
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    Feeling frustrated.....

    I was informally diagnosed by my pulmonologist in my hometown. I did the research and requested a referral to Cleveland Clinic. I saw Dr. Villa Forte 10/25. She did a bunch of new bloodwork and...
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    Re: My journey so far

    Sounds very similar to my experience. I've had lung issues for a very long time. I have bronchiectasis and was diagnosed with asthma for years until someone finally did a bronchoscopy and saw that...
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    Re: Trying to learn all of this

    Thank you! Prayers to you on your first infusion! I can imagine your fear, but I keep trying to focus on how it will make us feel better in the long run!
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    Re: Trying to learn all of this

    Thank you, Anne! Me too!
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    Re: Trying to learn all of this

    Yes, I took my biopsy slides and she sent those off to be re-analyzed. She said the report was not detailed enough for her. She was fantastic. I know I'm in good hands. We are about 4 hours away...
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    Trying to learn all of this

    I went Friday to see Dr. Villa Forte at CC. She was great. She spent about an hour and a half with me. She did a ton of bloodwork, of course. One just came thru last night. So, I'm positive for...
  10. Re: New Patient appointment at Cleveland Clinic

    The nurse called me this morning from my pulmonologist's office with an appointment for January 27th, with neither of the drs I had requested. I got online and chatted with Cleveland Clinic and have...
  11. New Patient appointment at Cleveland Clinic

    Has anyone been referred to Cleveland Clinic recently as a new patient? My dr was supposed to send in a referral on 10/4. I've called his office twice to follow up. Last week they said they were...
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    Re: In process of diagnosis

    Yes, I was so thankful to see his post and then research the drs at CC. It's a long drive but we've done it in a day for follow up appointments, so not terrible. My husband does the driving mostly,...
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    Re: In process of diagnosis

    Thank you! I had actually been reading and found this forum prior to my follow up appointment from my biopsy. I saw a comment you made about the 2 drs at Cleveland Clinic and I printed their...
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    In process of diagnosis

    I've had lung and sinus issues for years. I started seeing a new pulmonologist about a year ago and we have now reached a likely Weg diagnosis. He is making a referral to Cleveland Clinic for me. ...
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