Hi Gwen :)
Sorry to jump into this thread, but I don't seem to be able to post anywhere else.
There's a Vaculitis UK support group meeting in Llantrisant this Saturday, if you're interested. As...
Type: Posts; User: Tippon
Hi Gwen :)
Sorry to jump into this thread, but I don't seem to be able to post anywhere else.
There's a Vaculitis UK support group meeting in Llantrisant this Saturday, if you're interested. As...
I'm in the same boat as Delorisdoe - I get the emails, but generally can't do anything else :(
Same here. I've had a few emails telling me people have replied to other posts I'm watching, but I can't see them :sad:
Evening all!
Just wanted to drop in and say hello while I can. For some reason, I can barely get into the forum. On the very rare occasions I can get in, I can't view most of the topics, I just...
Same issue again. Haven't been able to get on since that last post :(
Only just got on the site again since approx July 23rd. It's now Aug 1st :sad:
Thanks Andrew :)
Let me know if there's anything I can do to help (might have to be by email though! :sad: :flapper: )
Andrew: I still can't access the other thread, but since about 10PM Thursday night (UK time), I haven't been able to access the site at all. I just tried to access it through the IP address and got a...
Can't access the following thread through FF or Chrome, either through the email notification link, or browsing to it through the forum :(
...
If it helps, I'm in Aberdare, approx 20 miles north of Cardiff, Wales, UK :)
Enjoy your life while it's nice. It's too easy to get run down with WG, so make the most of it :thumbup:
I've been contacted by someone from Christchurch Hospital in Dorset as they have a patient with Wegener's looking for local support groups. Anyone in the area, or know of any groups?
I'm currently having a problem with the 'Newly Diagnosed' thread in New Member Introductions:
...
Andrew: If you see this post, I hope you don't mind me making some suggestions.
If you've got any custom themes or plugins running on the forum, try disabling them. I'm sure none of us would mind,...
On the rare occasions I've been able to connect, I've been having the same problem. I thought it was just me though.
I'm on Sky in the UK, but this is the only site I've noticed problems with :(
There's a Vasculitis meeting in Cardiff this Sunday(24th). Details and links here:
Face To Face Meetings | Wegeners-UK
Hi Michelle :)
I'm good thanks. Will have to start dialysis again soon, and probably need a kidney transplant, but it's nothing unexpected. I keep teasing my friends by squeezing their back, near...
Afternoon all! :D
I've been trying to get on the site for about a month or so, with no success, but finally got in today!
I haven't been getting any specific error messages, just site not...
Hi Andrew :)
I'm still having problems accessing the site. Most of the time, I have to refresh the page quite a few times before it lets me in, but it then works perfectly from there. I don't seem...
I've had an email notification telling me that someone has posted in the 'Website Issues' thread, but I can't access it! :tongue1:
The page looks as if it's loading ok, but stays completely blank....
I can't understand why so many of the articles out there focus on the worst case scenario. Don't give false hope, but make it clear that it's not a death sentence, except in rare cases :wink1:
I'm officially stupid. I put the wrong settings in when I changed the host details... :predrage:
Corrected it now, but have to wait up to 24 hours for it to be updated.
Thanks for the heads up. I'm supposed to be in the middle of moving web hosts and updating the site, with two of my sites, but the new host has gone down while I was rebuilding both sites :crying:
...
That's the sort of information that's online, unfortunately :(
When I was diagnosed, my father found the Wikipedia entry for WG, and thought I was as good as dead. It's the main reason I made my...
Hi Rose :)
I've got my own website, which focuses on UK based resources, but also pointed them here. Hopefully between us all we can help them out :)