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Thanks for the info drz! I had been on 50-60 mg of pred for months. I've had luck tapering down to 7.5mg with no major ear pain but ongoing other ear and sinus issues, and now trying for 5mg. My...

Adelie,

Wondering if you have any feedback on taking Azathioprine? My rheumatologist is thinking of having me start this with hopes that it will get me off prednisone and perhaps also truxima. ...

Sorry to hear you're going through this. I have not tried it yet, but my ENT suggested Ponaris Oil. He said to put a drop or two on a Q-Tip and wipe it on the inside of each nostril. You can get...

Ruby, thank you for this information. It is really helpful and helps de-stress a bit :smile1:

Razie

Hey all, being newly diagnosed with GPA, I’m still trying to figure out what daily precautions to take or consider. For example, wearing a mask everywhere, asking people who come to my home to wear...

jmq, my understanding is that Avacopan, which is sold under the name Tavneos, affects a different pathway than Rituximab. It is not a biosimilar for Rituximab. I had 2 infusion treatments with...

Thanks drz,
Do you know if folks are able to replace prednisone with avacopan, or is it more supplemental?
Thanks!
Razie

Yikes! That doesn't sound very promising. So sorry to hear you had such a bad reaction.

Thanks Pete, it's nice to know there's company in a place no one wants to be.

I've had 2 infusion treatments with the Truxima first one lasted about 6 hours, the second lasted about 5 hours (which...

Hello all,

I have recently been diagnosed with GPA. Had 2 rounds of Truxima, and am tapering off prednisone, currently at 20mg/day. My rheumatologist has suggested Tavneos/Avacopan with the hope...

Hi all,

I've recently been diagnosed with GPA. I'm still in an active state, recently completed 2 rounds of infusion therapy with Truxima. Still trying to learn about GPA and how to deal with it...