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  1. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    My tacrolimus level was raised a little when I had blood tests done, which can have some effect on kidney function. Dr phoned me and asked me to reduce my dose, so we'll see if that has helped next...
  2. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    The ups and downs are expected, but there's been many more downs than ups. From a high of 51% in mid April, it's dropped to 36%.
    Admittedly, the 51% seemed a bit of an anomaly as the next result...
  3. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    Bit of a disappointment with latest blood results. All the kidney function I'd gained over the last 6 weeks or so, has been lost and I'm back down to 36%. I won't let it worry me too much.
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    12,137

    Re: Happy Birthdays Thread

    :lol:

    Happy Birthday Pete!
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    12,137

    Re: Happy Birthdays Thread

    Mine's actually tomorrow, the 26th August.
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    12,137

    Re: Happy Birthdays Thread

    Thank you,

    I've got the family (including the original kidney owner :lol:) coming over soon for a bbq.
  7. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    My month of positive blood results has carried on and two weeks after my last test which showed a 2% increase in kidney function, it's increased by another 2% to 40%. :rolleyes1:
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    12,137

    Re: Happy Birthdays Thread

    Happy Birthday Anne!
    Hope you have a great day and a year of good health.
  9. Re: First Rituxan for Relapse - Check! Thanks everyone!

    Hi Kim,
    Glad the RTX infusion went well, especially after slowing it down and giving you a different antihistamine.
    I think you're correct with the 2-3 month period before RTX starts working, but...
  10. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    Latest blood results were really good. Kidney function has risen 2% to 38%.
    From mid April I had constant declining kidney function for 3 months and was concerned I maybe rejecting my kidney. But...
  11. Re: Wegeners/GPA for 41 years - Transplant for 25 - Having a Relapse

    Welcome Kim (and thanks for tagging me in Alysia),

    41 years is great, especially with kidney involvement!

    It's very helpful to read that lowering your anti-rejection meds may have caused the...
  12. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    Latest results show kidney function has stayed the same at 36%. I'm happy with that, as on the odd occasion when I've had an improvement (like the last result), the following test result has shown a...
  13. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    Just a quick update.
    There was a delay in receiving my latest blood test results, but I'm happy to report my kidney function has improved slightly (by 1%, to 36%). It's not a big improvement, but...
  14. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    It's hard to say. I'm still having good days where I definitely have more energy than before the transplant. But my bad days seem even worse than before transplant.
    There is the possibility that my...
  15. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    As mentioned in my last post, after weeks and weeks of a slow decline in kidney function, I eventually had a 4% increase, which we thought was due to a change in dose of my anti-rejection drug.

    I...
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    12,137

    Re: Happy Birthdays Thread

    Happy Birthday Phil and Barbara (and my wife who also shares their birthday). I would have liked to tell you all about my successful kidney transplant, but I guess you were already there with me...
  17. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    I'm sorry for any worry caused by not updating as frequently as usually. My blood results from the last day I updated (June 19th) showed still no improvement of kidney function, but thankfully, no...
  18. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    Hi Alysia,
    My kidney function has continued to decline 1-2% evey couple of weeks. I've also had much less energy last week or so.

    I saw one of the specialists today and they think that it's due...
  19. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    I suspect that many results may be falsely high if you're dehydrated. After all less water in your body/blood will lead to higher concentration of most things.

    My swelling went down a lot on the...
  20. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    Hi Alysia,
    I thought I'd wrote an update, but mustn't have (must be the Pred playing it's mind tricks).

    The Ultrasound showed good blood flow in kidney and bladder was good. The area where the...
  21. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    Just a quick update.

    My blood results showed a tiny 1% reduction in kidney function last week. Not happy that it's another drop in function, but it was so small drs aren't concerned. In fact I've...
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    Non-identical organ swap

    I first became aware of paired/pooled organ donation during my transplant work up. This was for the purpose of swapping kidneys around between donors and recipients making matches for living...
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    Re: Azathioprine - Mycophenolate mofetil

    Hi Angela,
    I was started on Cyclophosphamide and prednisolone, but couldn't tolerate Cyclo. I was moved on to pred and Azathioprine and this worked well for many years.
    But after my last...
  24. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    I don't think the decrease in pred is directly related to the decline in function. But if the decline in function is due to rejection, then the pred would have been helping to stop the rejection and...
  25. Thread: Transplant

    by gilders
    Replies
    248
    Views
    26,300

    Re: Transplant

    Had my weekly appointment yesterday.
    The good news is that I can drop pred from 10mg/day to 7.5mg.
    I won't call the other news "bad news" as it's only a small drop in kidney function (42 - 40) and...
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