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    Hello fellow weggies!!! I had dropped of into the...

    Hello fellow weggies!!! I had dropped of into the land of cytoxin again for about 4 monthes or more. Dont remember really sad. Anyway decided to stop it and did. Doc put me on methotrexate until...
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    Got the first letter and was denied. appeal is...

    Got the first letter and was denied. appeal is next. feeling so so. taking one day at a time like everyone else. Weather is a big factor this year. feeling it.
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    I am also hoping the disab. happens soon....

    I am also hoping the disab. happens soon. Everyone I have spoke with says they were denied first. A woman I met today while waiting in a doc office that has loupis on top of a whole bunch of other...
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    hello out there! i have been on a whirlwind of...

    hello out there! i have been on a whirlwind of doc appts. hospital stay for a couple days for iv antibiotics and high doses of predisone. back on cytoxin since december? november? cant remember....
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    well its done. got my new hip monday and at rehab...

    well its done. got my new hip monday and at rehab now. going home in xmas eve they are saying. all well and they ended up replacing 1/3 of the bone. They went with porcelin. And said it last longer....
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    Hello everyone!! Helen and I are both on cytoxan...

    Hello everyone!! Helen and I are both on cytoxan again. She at 50mgs and has lost all her hair. I am at 150mg and coping well. My body is falling apart but my mind is still working kinda. I am going...
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    went back to docs on tuesday after we returned...

    went back to docs on tuesday after we returned from vermont. The swelling was still bad and now can feel it brewing in my left foot. He took a look and increased the cytoxan to 50mgs for now and have...
  8. It is good to hear the 1st went well. The...

    It is good to hear the 1st went well. The infusion lab I go to usually was reacations with everyone who takes it. my first time malwas okay. second time better but third time i went in tired and weak...
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    Alot has happened in the last 10 days. WG stopped...

    Alot has happened in the last 10 days. WG stopped by and reared its lovely head. Ended up in infusion with mega doses of steriods for 3 days. 1 gram a day. That was fun. The second day I was better...
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    i have another doc appt with ra today. that makes...

    i have another doc appt with ra today. that makes 7 visits in three weeks? they see me and then setup another fallow up. The doctor is going to think i am a stocker or something.
    I figure with all...
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    I am or try to be as strong as i can for my...

    I am or try to be as strong as i can for my children. They dont see me feeling sick often and if they do it seems the world falls apart. No support from spouse he is just another kid but with a job....
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    Thank you once more it is easy to forget...

    Thank you once more it is easy to forget sometimes that wg doesnt come back the way it did before. guess 3 and a half years isnt much exprience to look back on yet either. between allergies this new...
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    oh .......also forgot. my kids have been sick .so...

    oh .......also forgot. my kids have been sick .so when they go in and get a script for antibiotics They usually automaticlygive me the same. So had the zpack and that stopped things from getting...
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    Lake tahoe the California side. I have admired...

    Lake tahoe the California side. I have admired yours also, where is it? my teeth have been a problem since they started coming in as a small child. My mother had scarlet fever when she was prego...
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    Thank you........We all just take one day at a...

    Thank you........We all just take one day at a time. With the hope the the next is equal or better.Hard to look at myself. Not just moon face anymore.....more like moon body. My neck has seemed to...
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    Thank you........We all just take one day at a...

    Thank you........We all just take one day at a time. With the hope the the next is equal or better.Hard to look at myself. Not just moon face anymore.....more like moon body. My neck has seemed to...
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    thank tons. I see the blood doc on tuesday to...

    thank tons. I see the blood doc on tuesday to check for blood cell cancers. the steriod makes sence also. the mgs have been up and down every week. going to be a long weekend. o2 is helping tried to...
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    well it looks like things sre going to get worse...

    well it looks like things sre going to get worse before better...........cant have rituxin treatment for 4 more weeks at the earliest. For some reason this time it isnt just hands or flu like aching....
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    Hi everyone! I am not doing as well as act too....

    Hi everyone! I am not doing as well as act too. the monster is back and decided to come back in a different place, It has always been my hands and mildly all joints with pulm function decline. This...
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    Thanks and nice to met you also. Me at 44 with...

    Thanks and nice to met you also. Me at 44 with three teenagers and a nine year old things get a bit crazy. I am hoping to make it to see my grandchildren thats my hope. Not that I want anytime soon...
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    okay let me see if I can get all this in the...

    okay let me see if I can get all this in the right order......I crushed t12 vert. was scheduled for the cement injection then had another mri and canceled the surgery. Had injections instead 6 of...
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    Thats the plan. They will do one of two...

    Thats the plan. They will do one of two things..............make the canal space larger with the ballon so nerves have more space and fill in around it or hopefully just fill in the spaces in the...
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    Helen is 75 years old. originally from here met...

    Helen is 75 years old. originally from here met her husband from germany then moved there and raised the family. now the kids are grown and decided it was time to come back. she is a sweatheart. Her...
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    OMG......I almost forgot.........I finally after...

    OMG......I almost forgot.........I finally after 3 long years befriended another weggie! face to face. met at the infusion room 2 monthes ago. There is a forty year difference but we still talk to...
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    Also some good news the o2 is helping my gas...

    Also some good news the o2 is helping my gas exchange rate. I was at 51 now at 71. almost there. found out that because of where I live the highest is 80 here. over populated and sarrounded by 3 big...
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