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Type: Posts; User: Vansyckle73

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    Poll: Re: Epstein Bar Virus Curiosity

    Yes!


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    I'm newly in remission but don't want to rock the...

    I'm newly in remission but don't want to rock the boat.
    Thanks, I will ask them again since it will require more than just a filling like I had previously thought.


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    Dental work

    Do Wegener patients need special dentists? I posted on an online forum and am getting mixed responses.

    I went to the dentist since I had a filling cone lose and I wanted to get ahead of it. Turns...
  4. Welcome to the group. I was on Cytoxan for 3...

    Welcome to the group. I was on Cytoxan for 3 months. Moved to Rituxan about 2 weeks ago. Wegs affected my sinus, eye, and lungs.

    My thoughts go out to you and your family. It is hard to deal...
  5. Rituxan and nightmares- is there a connection?

    Had my first Rituxan infusion yesterday. While I was looked up I obviously was knocked out by the Benadryl but I had a nightmare I was there.

    The same thing happened tonight. I woke up a few mins...
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    Welcome! Sent from my iPhone using Tapatalk...

    Welcome!


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    So yours is on your left side too. I thought of...

    So yours is on your left side too. I thought of that but would have expected a fever. Thanks for your feedback.

    I'm going to call the doc today. I can't explain the chills but the pain feels more...
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    I clean it after every use and do a special...

    I clean it after every use and do a special cleaning every week and I do use distilled water with neilmed packets. The ENT saw a huge improvement in my sinuses since the machine.


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    Chills and pain- new symptom?

    I try to have a very structured life. Eat, sleep, rest, at the same time every day. It keeps me from over doing it.

    But for the past 3 days I have woke up in extreme pain in my hips that goes to...
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    It ended up in your cheek and jaw? What were...

    It ended up in your cheek and jaw? What were those symptoms like?

    I hope to remain in the area but I do need to get better. No plan to leave yet, but hopefully we can still make progress and...
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    I will keep that in mind. My current doc is doing...

    I will keep that in mind. My current doc is doing that and so far so good. Very pleased so far by the progress.


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    Why is the rheumatologist the right one to manage...

    Why is the rheumatologist the right one to manage it? Do they do something specifically different than a pulmonary doctor would? Just curious.



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    I am on cyclophosphamide and prednisone under the...

    I am on cyclophosphamide and prednisone under the direction of my pulmonary doctor. Next week I am meeting with a rheumatologist to start that relationship.

    I am considerably better but far from...
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    New to the group

    Was diagnosed at the end of August with Wegener's affecting my eyes, nose, lungs, and skin. Was sick for nearly a year and unfortunately went through 3 surgeries and one hospital stay before being...
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