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I believe research is the key. I have talked to my Rum Dr. and told asked her if she has had anyone donated their body to research. She was somewhat confused but sent me literature on how I could...

Do you have a good Rumatoligist? I don't want to sound unsupportive but I don't think we will ever be normal again. I am happy when I am in some sort of remission, but always on my mind that the WG...

Hello Airini,
I know WG affects different people different ways only you can decide what you can or cannot do. I also am, or was, a teacher and football coach. I started late in life going to school...

Sorry I cannot keep up with all the P3's, anca, etc. . I guess I should because it is my life on the line. But I have total faith in the dr's I am seeing and I am sure they will tell/ inform me if...

I am 66 now. Was a Special Ed. Teacher when I found out that I had WG. Had been only teaching for 14yr. Lucky I was vested in teaching and received disability from teaching for 5 yr then I will go on...

good to know you are doing better. This site is also good to vent:thumbsup:
John

Thank you for being so brave. May God bless you and the dr's that are studying this. PLEASE keep us informed.
John

MaxD
Thank you for the info. I called my rheumatologist today and she also prescribed prednisone, She thinks it is gout flair up again. What is tibial tendontis? I am on gout meds, cannot remember...

Thanks for all the info. you all sent. I didn't know what to think about the fatigue and pain in my achlies tendon. I guess when we get WG it effects people different ways. Maybe this is why it is so...

goodgirl
Have you been checked for the gout? I have the gout and am now on meds for that. I believe the tendon issue is all related to some of the meds. I don't think the gout meds are working but...

This is the first time I have put a thread on the site. I have read a lot of what people are going through with WG :sad:and my heart go's out to you. I feel lucky that I have some
GREAT dr's.(5)....

GREAT blog: Keep fighting.

Talk to your dr. about taking a water pill. It helps me, but I do go to the bathroom a lot.

Believe me I know it isn't a blip on the screen. Some people are not understanding, unless they have the disease. I personally don't care to tell people what I have and how it effects me. Maybe we...

Don't fret on the kidney bio. I had no problem with it, of course I have a great kidney dr. I have had both meds. and it has helped.

Hate to hear about your mom. My prayers are with you now dealing with your loss.
John

WOW I thought I had it bad.
My prayers and thoughts are with her and you for a great recovery.
John

I am 65, and a teacher. I cannot get disability from Social Security because of my age and haven't paid into it for 10 years. I am presently applying for disability from teaching. I have been off...

Thank you for the info. Very useful and interesting. I know it is somewhat old but so am I (:
thanks again
John

Phil
In seeing your Ophthalmologist did he have any experience with WG? I am concerned about my eyes being blurred, subject to bright lights, floaters, and streaks of light. I went to an...

Keep track of your co level. I can usually feel it when mine is low. Sometimes as low as 76 but not to often. I know it is time to relax and take some oxygen. I have been told by my son, which is an...

Hello all
I didn't know wg can be related to masses in the lungs. I've had a lung biopsy (18 samples). No cancer but a mass in my left lung. Dr. now wants to go in and see what it is as the biopsy...

Lilly
Sorry it took so long to get back to you. Today is a good day so I thought I would surf the site and maybe I will learn how to use it (: . I am applying for disability from teaching. Have 3...

I hope this gets to you as I'm still finding out how to use the site.
I am a special ed. teacher in a youth locked detention center. I haven't been back to work this year due to the wg. No energy,...

Hi Dina
I've had my 2nd rtx yesterday and both times it went well. (: I believe it is helping. They told me that after the initial 4 treatments it will take about 4 weeks to get the full results....