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Type: Posts; User: John S

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    Re: Confirmed Diagnosis

    The biopsy of my new sores came back as eczema
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    Re: Covid vaccins and WG

    This is interesting https://www.nbcnews.com/health/health-news/fda-clears-astrazenecas-covid-antibody-treatment-immunocompromised-rcna8130
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    Re: Confirmed Diagnosis

    Itís been a few years since I had the granuloma annulare spots on my hands. Suddenly, similar spots are showing up on feet and legs. I believe they are associated with GPA.
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    Can Covid vaccine cause flare up?

    Iím midway between infusions so I got my booster shot on Monday. As Iím immuno-compromised they gave me a full dose of Moderna. Since then I have been overly fatigued, had headaches and started...
  5. Re: Newer evidence appears to support benefit of 3rd MRNA shot for some Rituxan patie

    Itís been 3 months since my last Rituximab infusion so Dr. Villa Forte said I could now get the booster. The clinic that administered the shot told me that immnocompromised patients get a full dose...
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    Re: Coronavirus and GPA

    I have not seen this information before:

    https://www.healio.com/news/rheumatology/20211118/booster-augments-covid19-vaccine-response-in-patients-on-rituximab-despite-prior-failures
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    Re: Sinus issues - what to expect?

    Before I was diagnosed with GPA, I had frequent very large nasal crusts. I called them caterpillars. They were huge. An ENT did a biopsy and surgery on my septum. Now I rinse daily with Neil-Med. No...
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    Re: Rituximab maintenance

    I get 500 units every six months. I’ve been in Rituximab for 3+ years and been told that I’m a “poster child” for the drug. My symptoms have been held in check and I take no Prednisone.

    Please...
  9. Thread: Third Vaccine

    by John S
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    Re: Third Vaccine

    Those of us on Rituximab donít seem to develop and keep antibodies. Iím wearing my mask, keeping distance and monitoring my health. If I contract COVID-19 Iíll do my damndest to get Regeneron quickly.
  10. Thread: Third Vaccine

    by John S
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    Re: Third Vaccine

    Dr. Villa Forte emailed me last night with advice to get third shot 1-2 months BEFORE next Rituximab treatment.
    I just had an infusion on Tuesday so that means mid December at the earliest for me.
  11. Thread: Third Vaccine

    by John S
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    Re: Third Vaccine

    Dr. Villa Forte advised me to not get a booster at this time.
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    Re: Coronavirus and GPA

    News:
    ďThe Food and Drug Administration is poised to amend the emergency use authorizations for the Pfizer and the Moderna Covid-19 vaccines Thursday to allow people with compromised immune systems...
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    Re: Coronavirus and GPA

    I got vaccinated in January, had Rituxamab treatment in February. I just scheduled my next treatment for August. I was hoping to get information regarding booster shots by now.
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    Re: Coronavirus and GPA

    I have started re-entering the world. My wife and I took a road trip to Dallas and Houston to see children. We stayed in hotels, ate IN restaurants, and hugged people.
    Since coming back, I’m...
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    Re: Coronavirus and GPA

    My wife and I are going on a road trip tomorrow. Weíve been home bound since the virus began but a grandson is graduating high school in Texas. This will be over 2000 miles round trip. Itís scary but...
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    Re: Coronavirus and GPA

    I need to keep reminding myself that the vaccine does not make me immune. Vaccinated people can still catch the virus. Vaccinated people can still transmit the virus.
    When youíre vaccinated, if you...
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    Re: Flare up and Rituximab route questions

    I believe that the answer for me does not rely on choosing the correct medication. Instead it has relied on choosing the best doctor to treat me. I chose Dr Villa Forte because she is a...
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    Re: Coronavirus and GPA

    :ohmy::ohmy:
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    Re: Coronavirus and GPA

    I read drz post about theFrench study three times and do not understand it.
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    Re: Ongoing Sinus Issues

    I choose to see Dr. Villa Forte. She is an expert on GPA and on diseases that mimic GPA. I had several tentative diagnosis of different diseases before I saw her. I was told that possibly I had Lyme...
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    Re: Flare up and Rituximab route questions

    I am a very satisfied Rituximab patient. At first, I got two infusions of 1000 units each, two weeks apart. Repeated in six months.
    Then it was reduced to one infusion. Repeated in six months.
    The...
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    Re: Coronavirus and GPA

    I got my second dose of Moderna vaccine in January 28th. Had a Rituximab treatment this morning (500 units).
    “I love it when a plan comes together”
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    Re: Coronavirus and GPA

    try Garrettís inChicago for popcorn. The Garrettís Mix is addictive.
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    Re: Coronavirus and GPA

    It’s been 2 weeks since my wife and I got the second dose of Moderna vaccine. We have gotten everything via online ordering and curbside delivery for 11 months. We have become used to stores...
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    Re: Coronavirus and GPA

    Any side effects?
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