Welcome AmyG
Glad to hear things seem to be heading in the right direction now.
Type: Posts; User: gilders
Welcome AmyG
Glad to hear things seem to be heading in the right direction now.
Sorry my Happy Birthday wishes and Avatar change is a few days late.
I took my wife away for her birthday (she also shares her birthday on the 7th July)
Missed but never forgotten.
Hi Ian,
Unfortunately it's always a balancing act with the meds. Ideally you want to be on the lowest dose that still keeps you in remission.
Azathioprine worked well as a maintenance drug for...
Hi tmesis,
I couldn't give an actual figure of what decline would be counted as sudden vs chronic as there's quite a few variables, for example the cause of the decline could be severe damage to the...
You're welcome.
I actually forgot about the potassium. The reason being, my potassium levels never went to high, even just before my transplant, except for one time when I went to A&E with something...
Hello All,
Only just spotted this thread, so I'll give a quick update.
Main thing is that my WG is still in remission and my transplanted kidney is still doig quite well at around 35%.
I have...
Hi @little sisiter
I've documented quite a lot of my renal involvment on here, but it's probably a bit hard for someone to peice it all together, so I'll try to condense my many years of...
Alysia Thank you.
Doing well overall.
Small donation sent.
Thanks again Andrew!
2013 for me, although I've been living with Wegener's much longer.
I do go through periods where I tend to pop in to the forum much less. These are usually periods where my Wegener's is behaving...
Thanks Masha
The only person I was near to was a St. John's ambulance member who had been asked to watch over me due to previous bleeding problems after a pneumonia vaccine. She was wearing her...
Thanks Pete and a Happy and Healthy New Year to you and your family.
Hardly left the house for almost 2 years and today I received an alert on my phone from NHS Track and Trace stating that I have been in close contact with someone who has tested positive for Covid....
You can find a replay at https://www.youtube.com/watch?v=A6O6kZxqyCg&t=2779s
It ends after 45 mins (not the 1hr+ the time bar suggests).
It wasn't as informative as I'd hoped, but still worth a...
https://covid.joinzoe.com/webinar/vaccines-and-immunosuppressed
Thought I'd share the above link for those interested. :smile1:
Pleased to hear the pain has almost gone.
Hopefully it doesn't return!
Kidney is still behaving itself thanks. I've a few issues to do with pain and severe fatigue, but so long as kidney is stable and wegs is under control, I won't grumble. Hope the lung issue isn't too...
Almost a week late, but Happy Birthday annekat
Hope you're keeping well
I'll be taking the third jab when it's available to me.
I am on strong antirejection drugs (Immunosuppressants) and considering I had no reaction to the first 2 jabs and the fact that I'm at...
Happy Birthday Phil and Barbara,
Missed and never forgotten.
Hi Andrew,
Sent donation usual way via PayPal.
I don't suppose Stripe does international transfers for free??
I've not been on RTX since before my kidney transplant just over 2 years ago, but I am on daily Adoport (Tacrolimus) and Myfortic (Mycophenolate).
I received my antibody result today and did not...
Kidney function can jump around quite a bit, be it a different lab, what you've eaten and most importantly how well hydrated you are.
Your best route to keeping kidneys healthy is to be well...
Hi Larry. Welcome to the forum.
Glad your kidneys healed somewhat after a year of dialysis.
I hope your function stays above 20%. I found that once my function dropped to 18% it was a steady and...
Hi Chadwyck.
I've not visited the forum for a while, so missed your post. How are your kidneys doing now?