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Type: Posts; User: smileyurbs

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  1. Re: EustachianTube Dysfunction: Balloon Dilation

    I have problems with my Eustachian tube being closed as well and have had 5 tubes put in, in 2 1/2 years. Mine usually last 6 months even thought they should last longer. My ENT as well has...
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    Re: Not a diagnosis I expected

    Hi Jim,
    I was diagnosed about 2 1/2 years ago. Your symptoms where very similar as mine, I was very fortunate my primary care doctor put the pieces of my symptoms together early on and requested a...
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    Sticky: Re: Wegeners Granulomatosis / GPA specialists

    Specialist name: Dr Pamela Freeman
    Location (Country/State/City): US, Orlando, FL
    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist
  4. Thread: New Memeber

    by smileyurbs
    Replies
    6
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    690

    Re: New Memeber

    Hi Don,
    Thank you for your response. I think my Rheumatologist is worried since I continue to get more symptoms with my nerves, not so much that I still have symptoms. My Neurologist says the same...
  5. Thread: New Memeber

    by smileyurbs
    Replies
    6
    Views
    690

    New Memeber

    Hi everyone my name is Sandy. This is the first time I am posting my personal story and journey with GPA. Last year in May I started having face pain that I kept attributing to a Sinus Infection,...
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    Re: Kidney Involvement

    Hi Linda,
    I hope everything went okay with the doctor's. I too have had kidney problems, along with permanent damage, since being diagnosed with Wegener's last July and have to watch my protein...
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