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Just saw this question... The clots were in his legs

I have not personally experienced your serious health problems, but I can say that I have grieved deeply over broken relationships. On hind sight and with time (and not as long as you think), I...

My husband, Darren, is just finishing 6 mos on Cx. He did lose a lot of hair--mostly in the last couple of months

My husband was diagnosed this summer. I continue to go to almost all Dr appointments. I can so relate to your struggle to get information and understand to help in any way possible. I know Darren...

...Oh, and he's been in warfarin since then. He will probably be on it for another 3 to 6 months???

How scary!! My hubs, Darren, also developed a DVT after his 1st hospital stay in July. He was back home for 2 days after his "pneumonia". He developed bad leg pain. We went to his PCP's office...

Thanks Pete :) It's great that you could discontinue the BP meds. Hoping Darren's PCP just needs to tweak his meds too

~Laurie

Does anyone have any experience with BP issues when tapering off pred? Darren always had normal BP before he was on high doses of pred . He was prescribed metoprolol. He has tapered to 10 mg pred...

We are in IL- St Louis is about a 6 hr drive from here. We go to local hospitals-Advocate and received 2nd opinions from U of Chicago doctors. We would have preferred a trip to Mayo/MN, but it...

Darren grew up at a small horse farm adjacent to Golden Oaks farms He rode horses and camped in the woods. Very small world-wow

Welcome fellow Midwesterner. We are in IL near the WI border. Just joined this forum recently ourselves
~Laurie and Darren

We are new to WG since this summer. I have taken some cues from this site and done some reading. We have made some changes that will hopefully compliment my hubs treatment. He has WG and I am the...

Please know that things WILL and CAN get better. Your medical issues do not define you. You can and will get better. If someone is not supportive, put them aside at least for now. Concentrate on...

So happy to hear of your recovery/remission. Wishing you continued good health. -Laurie and Darren

Hi Jennifer--I hope the RTX goes well for you. That is the med we are keeping 'in our pocket' for now. Our primary Drs are with Advocate hospitals. U of C is the 2nd opinion --it was a train and...

The picture is one of our dogs-- Captain Al.
We are Laurie and Darren –Darren was diagnosed with Wegener’s in July 2013. I am his wife Laurie. I am his personal medical researcher and a...