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Tebow is a good man and the publicity abt Bailey should generate some interest abt WG. do feel bad for her and all she has endured in her short life. boo that the broncos lost and tht greenbay lost....

Rose, just catching up on the blog, after moving. I have had vertigo since my diagnosis and tho it less now, over 2 yrs pst, it still happens. I figure it is due to some damage from WG. no doc could...

so very true abt sleep, between the meds, preds in particular, and WG itself, felt like I didnt sleep for a long time. now I sleep sometimes up to 5 hrs but that is rare, mostly 2-3 hrs and wake...

welcome,Kevin, there was a 16 yr old teen diagnosed in the town I was in 27 yrs ago and since I knew the family, know how hard it was for him. but know that being young is a plus in the healing...

gladyou are doing better, we all understand those backward steps. I am back after moving and still getting used to the new isp. am tired but have managed to get the house in shape with help from my...

what happened with Jack? I had not known abt this and I am so sad. I will be offline now for a few days as am moving so hope to talk to you all next wk.

glad its going well, hang in there. and remember to smile thru it all cause it will be worth it! hugs

sending you good thoughts! it will go well.

good luck Mike! hope it helps.

my pill bottle says mycophenolate so guess thats the generic and have been taking it for over a year with no adverse effects. just the usual symptoms they list. my insurance always goes for the ...

excellant,Phil! keep on truckin...

oyoyoy. hate to see that we still have to go thru all this garbage! 61 is a wonderful score! wish some one could explain to me why a drug, such as cellcept, is so expensive. also garbage. the pharm...

just hang in there and will yourself better! these flares are the pits but look forward to improvement.doc said I could lower the cellcept to 500 daily but be very aware of symptoms. sigh... he...

its my kidney function since I have damage there. means I am functioning at abt 51% of normal. it will never be normal but would love to be abt 60%. so we shall see.

yikes, wonder what it is. got my labs back and they were just wonderful! EGFR was 51, WBC was 9000-lowest its been since I got WG, only a couple were off the norm. hope the doc agress to lower the...

ditto what Sangye said on gradual improvement. I can only walk abt 1/2 mile and thats pretty slow. my aches really increase with the distance esp hips and feet. on cellcept my head got fuzzy and more...

glad to hear you are feeling better. keep up the good work.:thumbsup:

one of the things I have hated most abt getting WG is that I feel many of my choices have been taken away. its do this or they could be dire consequences. sigh... so i bite the bullet and do it and...

both sides of the coin are real. so it is a personal choice. I do know my docs want me to be healthy but I do feel pressured by them. the pneum shot is not a yrly one. sangye is right abt them not...

I got the Pneumonia last year and now get the flu ones yrly. was told to due to the suppressed immune system. I had not gotten any before WG. and my immediate fam. was told to get the flu ones for my...

it seems that now I dont have to go so high on the preds with a flareup and then can come down more quickly until 5 and the go slow again. so maybe yu can look forward to this. I do feel better on...

I hate having to get so many vaccines now so understand. :biggrin1:

excellant on the antibiotics! and you will feel better off it. get all my labs done this week.

I have been on cellcept for just over a yr and doing ok w/it. had stomach problems until took it closer to meals, not 1 hr before. sangye suggested that. just decreased to 750 daily. how much are you...

that medicalert is a really good idea.