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  1. The appointment with the new PCP in Farmington,...

    The appointment with the new PCP in Farmington, MN went very well. Before the appointment, he researched Wegeners Granulomatosis and read my medical record. During the appointment, he asked questions...
  2. Thank you all to who replied and/or like this...

    Thank you all to who replied and/or like this thread. All the support of the Wegeners Granulomatosis/GPA forum means a lot to me. Granted, there are supportive people in my life, but it helps to talk...
  3. Thank you Mike-2012 and that was an awesome thing...

    Thank you Mike-2012 and that was an awesome thing to do for your Nurse Practitioner. Back in 2008, I decided to have a get together with friends every anniversary, because in previous years the day...
  4. Thank you and Happy Anniversary to you too,...

    Thank you and Happy Anniversary to you too, Debbie C. :hug3: Been taking Prednisone and Bactirm for over three years. Currently at 10 mg of Prednisone, but wish it was less.
  5. Update: Another year with Wegeners Granulomatosis

    Last weekend was my 17 year Anniversary of my Wegeners Granulomatosis. This time I decided to just have a small get together compared to recent years. On July 21st, I decided to bring in bagels to...
  6. Sorry vdub I should have specified Twin Cities...

    Sorry vdub I should have specified Twin Cities Minnesota. I wasn't aware there were multiple twin cities through out the world.
  7. I was able to schedule an appointment with a...

    I was able to schedule an appointment with a doctor at the Fairview branch clinic in Farmington. After reading his profile, he looks like a good candidate for my new PCP and is associated with a...
  8. I am only expecting the PCP to treat me for...

    I am only expecting the PCP to treat me for everything except for wegs and communicate with my Doctors at the Mayo Clinic. The regular PCP I had in was great and communicated with my rheumatologist...
  9. Looking for new General Physician in the Twin Cities

    Does anyone know of a good General Physician in the Twin Cities Metro area? I fired the last one after they asked me what is Wegeners Granulomatosis during my first appointment. I don't know if they...
  10. Looking for new General Physician in the Twin Cities

    Does anyone know of a good General Physician in the Twin Cities Metro area? I fired the last one after they asked me what is Wegeners Granulomatosis during my first appointment. I don't know if they...
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    Sticky: I agree. The Mayo Clinic has GPA specialists in...

    I agree. The Mayo Clinic has GPA specialists in the Rheumatology, Pulmonary, and Nephrology Departsment. I am currently seeing Dr Kenneth Warrington.
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    Sticky: Specialist name: Dr. Kenneth Warrington at Mayo...

    Specialist name: Dr. Kenneth Warrington at Mayo Clinic
    Location (Country/State/City): Rochester, MN 55902
    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist
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    Wegeners Granulomatosis and Dating.

    Hi everyone,

    Lately, I have been looking into having a relationship again after being single for sometime. I had relationships in the past, but they never worked out.
    Some of the relationships...
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    Went back to see my Rheumatologist and...

    Went back to see my Rheumatologist and Nephologist last Tuesday after finishing the 3rd and 4th (final) Rituxan Infusions. They ran blood and urine tests to see if there is any improvements after the...
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    Rose, I wasn't on any medication when the...

    Rose,

    I wasn't on any medication when the recent attack happened. I was in re-mission for for about 2 years and was doing good.
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    Rose, Yes, Wegeners has attacked my kidneys...

    Rose,

    Yes, Wegeners has attacked my kidneys again 15 years later. My kidneys were also attacked back in 1999.
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    Thank you lag713! The Mayo Clinic called me the...

    Thank you lag713!
    The Mayo Clinic called me the other day and they have my labs scheduled already after the treatments have been completed.
  18. Thread: Mayo Clinic

    by Gragnoc
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    I agree BarbW. I am currently seeing doctors at...

    I agree BarbW.
    I am currently seeing doctors at the Mayo Clinic. They will set you up with the best doctors and you just have to make the appointment. When making the appointment, you should tell...
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    Went to the Mayo Clinic with my best friend Eric...

    Went to the Mayo Clinic with my best friend Eric on Saturday for my second Rituxan treatment. The infusion went a lot quicker this time since they pushed 100mg of Prednisone instead of 1000mg IV...
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    My brother took me back to the Mayo Clinic on...

    My brother took me back to the Mayo Clinic on Friday, saw a Rheumtologist, and had a CT Scan. The CT Scan confirmed kidney inflammation caused by the Wegeners Granulomatosis. Both the Rheumtologist...
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    Update on Gragnoc

    Hi Everyone,

    I went to the Mayo Clinic to see a nephrologist yesterday with the help of my best friend. The nephrologist is very concerned about my high urine protein levels, the pain in my sides,...
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    lag713, Have you ever experienced any sneezing...

    lag713,
    Have you ever experienced any sneezing fits followed by bleeding?
    Greg
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    Lag713, Thank you for the warm welcome :smile1:....

    Lag713,
    Thank you for the warm welcome :smile1:. It is never too late to join the party. Everyone on the forum have been awesome :thumbsup:. When I was diagnosed with Wegeners Granulomatosis (23...
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    Thank you Anne. :smile1: I appreciate the...

    Thank you Anne. :smile1: I appreciate the encouragement. :smile1:
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    With all of the sinus involvement I have...

    With all of the sinus involvement I have experienced that past 15 years. I am very surprised that I do not have a saddle nose, but my sinuses do not drain properly and have to do saline irrigation...
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