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Type: Posts; User: Woodsyartist

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  1. Replies
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    Deb..... I was wondering how they finally got...

    Deb.....
    I was wondering how they finally got down to the determination. I am now a year into feeling sick with no diagnosis. I have picked up bits a pieces of info about your symptoms etc, but...
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    Sorry to hear about the results for you, Deb, but...

    Sorry to hear about the results for you, Deb, but there is some relief in having a diagnosis. Too many of us have been strung along in a state of "not sick enough".

    I am still undiagnosed, but...
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    I do not know if it is trust, but I definitely...

    I do not know if it is trust, but I definitely feel like I have to know as much as I can to ask the right questions. I've already been through a few doctor changes etc. It does not help that though...
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    You have all been so helpful. I am building my...

    You have all been so helpful. I am building my case for my Drs to continue to look into GPA despite their reluctance.
    My next question (which I thought about putting as a new post, but hopefully...
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    Thank you all again. I feel the issue is the...

    Thank you all again. I feel the issue is the pulm is trying to rule out GPA prematurely rather than ruling out other things.

    Interestingly, I asked a relative in the medical field if the CT with...
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    I appreciate your responses, as it helps me get a...

    I appreciate your responses, as it helps me get a little perspective on my symptoms. Thanks for the ANCA link RangersWife.
    Anne, I thank you as well because in this post and others I am able to...
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    ANCA w/o Weg???

    Still undiagnosed
    Just wondering....I have a positive ANCA (low positive but positive none the less) along with lung and sinus symptoms.
    Pulm after running Breath Function feel the issues are...
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    Thank Deb for posing this question. I was...

    Thank Deb for posing this question. I was wondering about it myself as I have sinus issues.
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    I too have not been diagnosed, due to no apparent...

    I too have not been diagnosed, due to no apparent hot spots to biopsy. My ANCA is elevated, and was about the same with the recheck. Symptoms consistent with breathing issues and fatigue, but it is...
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    Thinking of you Nikki and hoping you get some...

    Thinking of you Nikki and hoping you get some answers. Tell your Dr about the skin. As I see it, its your job to report it.....
    Follow up please and let us know how it goes.
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    Tired of waiting

    Feeling like throwing a please-biopsy-me party as I have about ten more days until I get to go see the next specialist.
    I never would have imagined these words have ever been...
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    I find it funny how when I am the midst of...

    I find it funny how when I am the midst of something fun and active, I do not feel so bad, but I have learned the after effects about three hours later and into the next day stink.
    I want so badly...
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    Thank you for the work you have done. I think...

    Thank you for the work you have done. I think the question you are posing is one which runs around in my head constantly, as we do not know the cause but at least would like to find some co-relation...
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    It sounds like this is presenting a challenge to...

    It sounds like this is presenting a challenge to who you are. I have also worked up until recently with special needs kids and even in my non-work life, always look to lend a hand, but I am feeling...
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    Michelle& Alysia Thanks for the info. I have...

    Michelle& Alysia
    Thanks for the info. I have been online and even in the Merck manuals trying to wade through the bloodwork/symptoms.
    I thought the ANA was reflecting the positive ANCA....but it...
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    It's no wonder I feel half crazy, half the...

    It's no wonder I feel half crazy, half the time....

    My ANCA is a decimal number, but I know my ANA is also up and it is 1:80.
    I wonder if there is some ratio conversion like I did in 6th grade...
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    Started seven months ago where I was "tired of...

    Started seven months ago where I was "tired of breathing".....busy days would wipe me out. This now has made it where most days wipe me out. My lungs have like a burning feeling that comes and goes...
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    Thanks for the info.....but I had to laugh at how...

    Thanks for the info.....but I had to laugh at how unhelpful it is that they changed the way they did it.

    My interest is only in that I am still undiagnosed, and do not know if I need to squeak a...
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    ANCA range?

    I've been wondering.... I had a high c-ANCA and a borderline high p-ANCA. Though the range of normal ends at 0.8 (according to my Dr paperwork,) what is high and what is very high? How high have...
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    This is a good question I also had about ANCA. I...

    This is a good question I also had about ANCA. I have an ANCA that was high, as the normal range I believe is up to 0.8. How high can it go?? Is there a high and then crazy high distinction?
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    Just keep breathing

    Hi.
    As of this time, I am undiagnosed, but think I may be "hanging out" for a while and trying to make sense of all the medical issues involved.

    I am from the Northeast US and live in a more...
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    Thanks

    Thanks to all of you who replied. I am still "undiagnosed" but continuing with a series of appointments.
    The Ear Nose and Throat did not see much to biopsy and was concerned with creating a false...
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    How long until you were dx?

    I know I have not introduced myself yet but was looking to see how long it took for some to get dx with WG.
    I live in a more rural area and think I have finally found a few Dr. who are willing to...
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