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  1. Thread: wiki wegs

    by LCL2013
    Replies
    39
    Views
    7,663

    Actually, the saddle nose pic didn't bother me...

    Actually, the saddle nose pic didn't bother me nearly as much as the pic and image of the eye. Started crying when I saw that, especially after having gone through so much involving my left eye from...
  2. Thread: Nosebleeds

    by LCL2013
    Replies
    35
    Views
    6,169

    Bacteria straight from the pot can also be a...

    Bacteria straight from the pot can also be a concern, annekat. For someone using one on a regular basis, I too would recommend either throwing it in the dishwasher every couple of days or sanitizing...
  3. Thread: Nosebleeds

    by LCL2013
    Replies
    35
    Views
    6,169

    So far, I'm able to get by with the Simply Saline...

    So far, I'm able to get by with the Simply Saline sprays and a humidifier in my room at night. Pre-Wegs I did use a Neti Pot when I was pregnant and had a cold to avoid taking any kind of medication...
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    Happy Holidays everyone!

    Happy Holidays everyone!
  5. Thread: I'm HOME!

    by LCL2013
    Replies
    9
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    3,267

    Glad to read that you're back home. Puppy love...

    Glad to read that you're back home. Puppy love is the best medicine. Hoping all goes well from here.
  6. I've read every post in this thread, and now I'm...

    I've read every post in this thread, and now I'm going to jump in here. Deb........no one who's eye is starting to bulge out of their head needs to wait for an ANCA test result! You need to be seen...
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    SandySH, Can you clarify your Methotrexate...

    SandySH,

    Can you clarify your Methotrexate dosage. First, you should only be taking it once per week, not every day, and it's not clear to me from your original post how often you are taking it....
  8. Replies
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    Cute! Looks like a lot more fun than crutches....

    Cute! Looks like a lot more fun than crutches. :biggrin1:
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    2,617

    To my knowledge, I've never had a staph...

    To my knowledge, I've never had a staph infection. That being said, my PCP was originally treating me for sinusitis, so put me on at least a couple rounds of antibiotics, which did absolutely...
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    I googled Epstein Barr titers and this is what...

    I googled Epstein Barr titers and this is what came up. Don't know if that helps you or not. :unsure:

    Alternate Names. EBV Antibodies; EBV is a very common virus, affecting more than two-thirds...
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    Orpheus - it's interesting you mentioned a...

    Orpheus - it's interesting you mentioned a 'smell'. I noticed the winter and spring before my symptoms started in earnest that if I was running and playing with my daughter I would get short of...
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    4,774

    Hi, Orpheus. Welcome to the forum. My goodness,...

    Hi, Orpheus. Welcome to the forum. My goodness, that's is one scary tale. I'm so glad you are doing better and blessings to your doctor for diagnosing you so quickly. I still feel deep gratitude...
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    Okay...I'm late again. Happy belated Birthday,...

    Okay...I'm late again. Happy belated Birthday, gilders!
  14. Replies
    14
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    3,190

    Uh oh! Sorry I missed it. Happy belated...

    Uh oh! Sorry I missed it. Happy belated Birthday, Pete!
  15. Replies
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    5,810

    txrepub4God, :sad:

    txrepub4God,

    :sad:
  16. Replies
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    5,810

    It's disappointing that they are letting you sit...

    It's disappointing that they are letting you sit a wait until they get a biopsy scheduled, etc. I went to an ENT for my "sinusitis" who only suspected WG and referred me to a Rheumatologist. But,...
  17. What a great story to read! Thank you for...

    What a great story to read! Thank you for sharing.
  18. Thread: Rituximab

    by LCL2013
    Replies
    163
    Views
    40,421

    Pete, Sorry to hear you suffered some slight...

    Pete,

    Sorry to hear you suffered some slight side effects. Hopefully that heartburn fades completely today.

    I'm at work now after my last infusion this morning. I guess it's just wait and see...
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    Happy Birthday, Anne!:biggrin1:

    Happy Birthday, Anne!:biggrin1:
  20. Replies
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    I called last week and requested the book. She...

    I called last week and requested the book. She didn't say how long it would take to receive, but I can't wait to check it out.
  21. Congratulations, Birdie!

    Congratulations, Birdie!
  22. I've become a huge germaphobe since I was...

    I've become a huge germaphobe since I was diagnosed. Actually, more so since this past Winter. I've suffered two bouts with bronchitis, the first about September of last year (managed to break a...
  23. Thread: Rituximab

    by LCL2013
    Replies
    163
    Views
    40,421

    I had my first treatment last Friday, Pete. Had...

    I had my first treatment last Friday, Pete. Had a small reaction (itchy ears and throat and even around my mouth), but the Benedryl took care of it. Good luck today! I get treatment #2 tomorrow.
    ...
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    3,279

    Okay...thought it was just me when I couldn't...

    Okay...thought it was just me when I couldn't find the 'like' button earlier. I feel better now. :biggrin1:
  25. Thread: Miricles

    by LCL2013
    Replies
    18
    Views
    4,192

    Wow!! Congratulations to you and your husband on...

    Wow!! Congratulations to you and your husband on your beautiful baby boy!
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