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Type: Posts; User: Solose

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  1. Re: Tinnitus, how can I cope with this symptom?

    I do see see a rheumatologist who is a vasculitis specialist. Honestly, I feel my case is fairly mild. The only reason the doctor put me on Rituxan is because I have some nodules in my lungs and a...
  2. Tinnitus got significantly worse after 1st Rituxan infusion, thoughts?

    For me the most distressing symptom of Wageners has been losing my hearing and getting tinnitus so loud I've had a lot of trouble coping. When I was diagnosed I was given steroid injections and...
  3. Tinnitus, how can I cope with this symptom?

    I am fairly new to this illness, I was diagnosed recently. I just had my first dose of Rituxan on Monday and am on a reducing course of prednisone. I did a week of 60 mg pred, then 2 weeks of 30mg,...
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    Re: Possible Wagner's but still in limbo

    I guess I can finally say I'm part of this community, I was formally diagnosed with GPA after another ANCA test came back positive. The PR3 and MPO are still negative and my rheumatologist said it's...
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    Re: Possible Wegner's but still in limbo

    It is so nice to feel supported, I think I mentioned I was on a message board for tinnitus sufferers for a while when that was all I thought I had and had to make myself stop going there because it...
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    Re: Possible Wagner's but still in limbo

    I had an appointment with my otologist on Friday that ended up being 3 hours. In the last 2 weeks since I saw him, I had a dramatic sensorineural hearing loss in my previously "good" ear. He is still...
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    Re: Possible Wagner's but still in limbo

    Thank you for all the info. When you had your sinus biopsy, how did you about having it ordered, was it the rheumatologist or ENT who performed it? I made an ENT appointment to ask for a possible...
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    Possible Wegner's but still in limbo

    Hi everyone, I've been lurking on this board but for a few days so I thought I would introduce myself. I'm 33 years old and I've had weird autoimmune symptoms since I was 19. I've had several...
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