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  1. Replies
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    Dirty Don! I am having so much problems with...

    Dirty Don! I am having so much problems with mine. I have jaw problems and I have to have cheek implants in order to try and wear mine. My gums started to dye and I had periodontal surgery first....
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    DrZ! I am sure there are more than you think... I...

    DrZ! I am sure there are more than you think... I didn't have a choice due to my gums dying. It's no fun trust me.. I really feel for people who have to go through It.
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    Hi Flint! Welcome my Drs told me to never use the...

    Hi Flint! Welcome my Drs told me to never use the net pot. They said it is not good and causes bacteria using them. I was told to use baking soda and salt mixed it real good in warn water. Dr's told...
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    DrZ! I wish that is the only problem I had in my...

    DrZ! I wish that is the only problem I had in my mouth. I am not so lucky ha-ha. My teeth started breaking off also.my biggest problem is my gums started to die and when that happens you start...
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    Hi Bettie! I am also one of the ones that have a...

    Hi Bettie! I am also one of the ones that have a saddle nose. That's where mine started. In my experience I started having problems now with my mouth. Not everyone gets the same issues. I am just...
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    Surgery again lucky me!

    I am not on here to much. I do check in to see how everyone is doing. I hope everyone is doing better than I am. I had my second month surgery yesterday and come to find out that my WG already caused...
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    Anna Kat! Where in S.W. FL are you? We might have...

    Anna Kat! Where in S.W. FL are you? We might have the same Dr's lol... I can't smell or taste ither. Sometimes it's good sometimes it's not. I hope it comes back a little. My Drs are concern right...
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    I agree with Pete! I been on methotrexate for a...

    I agree with Pete! I been on methotrexate for a while now and it always makes me feel bad when I take it. But mainly the next day is worse for me. I also starting breaking mine in half it helps but...
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    Sergio! I do believe it's possible. As my ENT...

    Sergio! I do believe it's possible. As my ENT said it's very rare and not many people are diagnosed with it right away. According to him you actually have to have enough symptoms before they can...
  10. Thread: Mouth issues

    by cjhnsn29
    Replies
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    1,387

    Alysa, you are lucky it stopped. It is no fun. I...

    Alysa, you are lucky it stopped. It is no fun. I really believe it has to do with my mouth breathing and medication. With the saddle nose I can't breath through my nose. I am glad yours stop.
  11. Thread: Mouth issues

    by cjhnsn29
    Replies
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    1,387

    DrZ! Being a registered Dental hygentist I have...

    DrZ! Being a registered Dental hygentist I have everything.whats sad is I never had problems with my teeth until the WG. Now I have most of my pain in my head.lol before you day it I know it's all in...
  12. Thread: Mouth issues

    by cjhnsn29
    Replies
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    Me2! Thxs for answering my question about mouth...

    Me2! Thxs for answering my question about mouth issue. You asked what I meant by my gums growing over top of my teeth. My WG is mostly in my face are and the Dr said I wasn't getting enough blood...
  13. Thread: Mouth issues

    by cjhnsn29
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    DrZ! Thanks for answering me on the mouth issues....

    DrZ! Thanks for answering me on the mouth issues. My WG does mess with my eye vision at times. Bright lights tend to hurt and I can't be on computer or watch TV for a long period of time. With having...
  14. Thread: Mouth issues

    by cjhnsn29
    Replies
    17
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    1,387

    Mouth issues

    I was wondering does anyone with WG have mouth problems? Most of my problems has to do with my face. Like others I also have the saddle nose and can't smell or taste. Recently I have issues with my...
  15. I also have the saddle nose and can't smell or...

    I also have the saddle nose and can't smell or taste anything. The Drs said if I have my nose reconstructed that they are not sure it would heal do to my immune system. I also wear glasses and people...
  16. Arlam. Well for someone who has been through...

    Arlam. Well for someone who has been through dental surgery. I will tell you what happened to my teeth. I have been a Dental hygentist for 20 years. My teeth were cleaned all the time. I started...
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    Hi Ians! I agree with all the comments that were...

    Hi Ians! I agree with all the comments that were said to you from the other WG people. I agree first you might need a better ENT doctor. I also have the saddle nose and alot of facial problems. My...
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    Thanks Annekat! It's not fun but I for one live...

    Thanks Annekat! It's not fun but I for one live with it.
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    Scottgirl! My WG is mainly upper, no kidneys or...

    Scottgirl! My WG is mainly upper, no kidneys or lungs involved so far. Mine is basically my head area, my nose is saddled,my eyes are swallon, I can't smell or taste, I just ended up with upper jaw...
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    PJ! I was exactly the same way that you are...

    PJ! I was exactly the same way that you are feeling. It's like I wrote what you said! If it was me in my opinion I would try and find another Dr to start with. This WG is hard for some Dr's to...
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    I am one of the lucky ones that can't smell or...

    I am one of the lucky ones that can't smell or taste. It's been several years now. I just recently had to redo my upper mouth and jaw area. They had to do bone grafting etc. I am hoping this will...
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    Annekat I relate to the family not understanding...

    Annekat I relate to the family not understanding at all. One day I can be great next day I can't even function and they say you were fine yesterday. My Dr explained to them there are good days and...
  23. Thread: Prednisone

    by cjhnsn29
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    Amy.r...I have been on Prednisone for a long time...

    Amy.r...I have been on Prednisone for a long time and started out on 80 also. I had the same problem with weight gain and the moon face. I was lowered down to 5 mg now because they put me on...
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    Patrickreed, Fatigue is part of the diease for...

    Patrickreed, Fatigue is part of the diease for sure. I really don't know how you work that many hours a week. That probably contributes you to be more tired. Dr's actually took me out of work because...
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    James! It feels like you are not getting better...

    James! It feels like you are not getting better or the Rx's you are on are too much. I felt that way myself it took them time to find what RX'S worked the best for me. They are probably having some...
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