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  1. Thread: Imuran

    by seashells
    Replies
    1
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    596

    Imuran

    I haven't been on here for awhile. Have had 2 rounds of rituxcin and am finally in remission. [emoji4] however the dr has put me on Imuran to keep me there. I've been on it for almost 3 weeks now....
  2. Thread: Pain in legs

    by seashells
    Replies
    6
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    1,022

    Thanks for the replys. I haven't been doing any...

    Thanks for the replys. I haven't been doing any activity that isn't normal daily stuff. Having to take pain meds at night to sleep. Go to dr. Next week then rituxcin agsin.

    Sent from my SM-G900V...
  3. Thread: Pain in legs

    by seashells
    Replies
    6
    Views
    1,022

    Pain in legs

    I have had wegners for 3 years now. I'm getting rituxcin every 6 months. For the last 2 days I have been getting these horrible pains in my shin area. Almost feels like a hot poker is being shoved in...
  4. Thread: Weight loss

    by seashells
    Replies
    5
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    601

    I'm considering the sleeve it doesn't seem as...

    I'm considering the sleeve it doesn't seem as invasive. Thanks for the feedback.

    Sent from my SM-G900V using Tapatalk
  5. Thread: Weight loss

    by seashells
    Replies
    5
    Views
    601

    Weight loss

    Has anyone on here had weight loss surgery? Considering it but with the wg not sure how it would work.

    Sent from my SM-G900V using Tapatalk
  6. Replies
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    Nasty taste in mouth

    I am on methotrexate, steriod,Bactrim and folic acid. I had my last rituxcin treatment in april. Does anybody else deal with nasty taste in mouth and if so how do you deal with it. I chew gum but can...
  7. Replies
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    I currently have the same issue but I'm also...

    I currently have the same issue but I'm also getting rituxen treatments. I find if I eat with plastic it helps. And lots of gum.
  8. Thread: Rituxcin

    by seashells
    Replies
    3
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    683

    Come to find out I have bronchitis.

    Come to find out I have bronchitis.
  9. Replies
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    Yes! And stomach issues. I do injectable and just...

    Yes! And stomach issues. I do injectable and just started rituxen so the two combined wipes me out for a few days.
  10. Thread: Rituxcin

    by seashells
    Replies
    3
    Views
    683

    Rituxcin

    Got another question. I have had 2 treatments now and have noticed more of a cough and some congestion in my chest. Would that be the nodules breaking up?
  11. Replies
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    585

    Stomach issues

    Has anyone on here had stomach issues while getting rtx infusions? I just had my first one last week and am having issues with food going straight through me now.
  12. Thread: Rituxin

    by seashells
    Replies
    5
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    672

    Rituxin

    I just had my first infusion on Friday and I woke up with a sore throat today. Should I be concerned? My son is sick with a bad sore throat and ear infection.
  13. Thread: Rituxcin

    by seashells
    Replies
    10
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    1,133

    Getting infusion now. Had reaction so taking a...

    Getting infusion now. Had reaction so taking a break. Got more benedryl. That was kinda scary.
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    Sorry I haven't been back on lately. Been crazy...

    Sorry I haven't been back on lately. Been crazy with kids and work. I'm kinda nervous about tomorrow. I don't mind getting blood drawn but iv's I hate. My daughter is gonna go with me. She's gonna...
  15. Thread: Rituxcin

    by seashells
    Replies
    10
    Views
    1,133

    Rituxcin

    I go tomorrow for my first infusion. I hate iv's! Kinda nervous cause I don't really know what to expect. They said it would take 6 hours. Can anybody give me a heads up on what to expect?
  16. Replies
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    So far my kidneys are good. I have some nodules...

    So far my kidneys are good. I have some nodules but not a lot. I hate prednisone. I gain weight and sweat all the time. Just seems to mask the pain. Guess its the less of two evils. We went dress...
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    I'm so blessed.....love the name. This is my 2nd...

    I'm so blessed.....love the name. This is my 2nd time having the surgery. I've never done rituxcin before so I'm new to it also. I'm in a pretty bad flare at the moment. I'm on 60 pred and...
  18. Replies
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    Had tracheal surgery

    Well I had my trachea stretched on Monday and loaded up with steriods. I am breathing better so I'm thankful for that. I don't sound so much like Darth Vader lol. Still coughing and can feel wheezing...
  19. Thread: Nodules

    by seashells
    Replies
    2
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    537

    Nodules

    I went to Dr today and he said I have a total of 5 nodules of my lungs. Could someone please help me to understand this better. I'm confused lol. Thanks.
  20. Thread: Sweats

    by seashells
    Replies
    22
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    7,289

    Thanks everybody for the comments. Makes me feel...

    Thanks everybody for the comments. Makes me feel not so lonely. Went to dr today and she gave me more antibiotics. Said she wished they would get it together cause she hates putting me on more cause...
  21. Replies
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    Feeling miserable

    I hate to get on here and complain but I feel horrible. Just need to vent I guess. I am having tracheal stenosis and sinus involvement. I just recently had a pft done and I'm waiting on those...
  22. Thread: Sweats

    by seashells
    Replies
    22
    Views
    7,289

    I wish it was just at night. I was sitting at my...

    I wish it was just at night. I was sitting at my son's basketball game and my head just felt soaked. It's embarrassing people just look at you like you have a third head. My aunt informed me I was to...
  23. Thread: Sweats

    by seashells
    Replies
    22
    Views
    7,289

    Sweats

    I was curious if anybody else has severe sweats with their WG? I can be sitting still and all of a sudden my head just be soaked and its even worse if I'm trying to do stuff. They just recently upped...
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    It was 148/100

    It was 148/100
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    I've been on a water pill for years. I had blood...

    I've been on a water pill for years. I had blood work yesterday I go see my regular Dr tomorrow.
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