I haven't been on here for awhile. Have had 2 rounds of rituxcin and am finally in remission. [emoji4] however the dr has put me on Imuran to keep me there. I've been on it for almost 3 weeks now....
Type: Posts; User: seashells
I haven't been on here for awhile. Have had 2 rounds of rituxcin and am finally in remission. [emoji4] however the dr has put me on Imuran to keep me there. I've been on it for almost 3 weeks now....
Thanks for the replys. I haven't been doing any activity that isn't normal daily stuff. Having to take pain meds at night to sleep. Go to dr. Next week then rituxcin agsin.
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I have had wegners for 3 years now. I'm getting rituxcin every 6 months. For the last 2 days I have been getting these horrible pains in my shin area. Almost feels like a hot poker is being shoved in...
I'm considering the sleeve it doesn't seem as invasive. Thanks for the feedback.
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Has anyone on here had weight loss surgery? Considering it but with the wg not sure how it would work.
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I am on methotrexate, steriod,Bactrim and folic acid. I had my last rituxcin treatment in april. Does anybody else deal with nasty taste in mouth and if so how do you deal with it. I chew gum but can...
I currently have the same issue but I'm also getting rituxen treatments. I find if I eat with plastic it helps. And lots of gum.
Come to find out I have bronchitis.
Yes! And stomach issues. I do injectable and just started rituxen so the two combined wipes me out for a few days.
Got another question. I have had 2 treatments now and have noticed more of a cough and some congestion in my chest. Would that be the nodules breaking up?
Has anyone on here had stomach issues while getting rtx infusions? I just had my first one last week and am having issues with food going straight through me now.
I just had my first infusion on Friday and I woke up with a sore throat today. Should I be concerned? My son is sick with a bad sore throat and ear infection.
Getting infusion now. Had reaction so taking a break. Got more benedryl. That was kinda scary.
Sorry I haven't been back on lately. Been crazy with kids and work. I'm kinda nervous about tomorrow. I don't mind getting blood drawn but iv's I hate. My daughter is gonna go with me. She's gonna...
I go tomorrow for my first infusion. I hate iv's! Kinda nervous cause I don't really know what to expect. They said it would take 6 hours. Can anybody give me a heads up on what to expect?
So far my kidneys are good. I have some nodules but not a lot. I hate prednisone. I gain weight and sweat all the time. Just seems to mask the pain. Guess its the less of two evils. We went dress...
I'm so blessed.....love the name. This is my 2nd time having the surgery. I've never done rituxcin before so I'm new to it also. I'm in a pretty bad flare at the moment. I'm on 60 pred and...
Well I had my trachea stretched on Monday and loaded up with steriods. I am breathing better so I'm thankful for that. I don't sound so much like Darth Vader lol. Still coughing and can feel wheezing...
I went to Dr today and he said I have a total of 5 nodules of my lungs. Could someone please help me to understand this better. I'm confused lol. Thanks.
Thanks everybody for the comments. Makes me feel not so lonely. Went to dr today and she gave me more antibiotics. Said she wished they would get it together cause she hates putting me on more cause...
I hate to get on here and complain but I feel horrible. Just need to vent I guess. I am having tracheal stenosis and sinus involvement. I just recently had a pft done and I'm waiting on those...
I wish it was just at night. I was sitting at my son's basketball game and my head just felt soaked. It's embarrassing people just look at you like you have a third head. My aunt informed me I was to...
I was curious if anybody else has severe sweats with their WG? I can be sitting still and all of a sudden my head just be soaked and its even worse if I'm trying to do stuff. They just recently upped...
It was 148/100
I've been on a water pill for years. I had blood work yesterday I go see my regular Dr tomorrow.