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Type: Posts; User: Marty B

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    I agree, my ENT is very aware of Wagener's so...

    I agree, my ENT is very aware of Wagener's so don't worry about that..yours should know if your ears, nose and throat are fine.. Then go back to Rheumy for him to let you know that Retuxan could take...
  2. Thread: Fatigue?

    by Marty B
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    Hi, I know for me that when my numbers are high...

    Hi, I know for me that when my numbers are high I'm in severe pain.. I know as the numbers go up and let the doctor know I'm in horrible pain, he does blood work and let's me know it's back.. We work...
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    Yes the prednisone will cause dizziness,...

    Yes the prednisone will cause dizziness, confusion and rashes.. Take your time coming off of it..5 each week sounds good that's not too fast but who would know better is your Pharmacist. They know...
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    My nephrologist did plasmapheresis first with...

    My nephrologist did plasmapheresis first with Cytoxan pill form, for my Kidney's for a month the Cytoxan a couple months.. I kept getting sick And my white blood count went to 0 so they had to take...
  5. I take cymbalta for the everyday pain and...

    I take cymbalta for the everyday pain and depression it takes the edge off.. So on a scale of 10 my pain is a 5 and you all know that is good. I'm in my second flare with Wegener's and I've learned...
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    A Good doctor will always consult with another...

    A Good doctor will always consult with another doctor!! A Specialist! But you should be seeing a Rhuematolgist for what you have! And you should be on Retuxan by now!
    My kidney doctor did...
  7. Thread: Remission?

    by Marty B
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    8,069

    I had kidney involvement first in 2010 that they...

    I had kidney involvement first in 2010 that they put me on Retuxan which put me in remission.. My kidney's function at 30% .... It came back and attacked my lungs, I'm back on Retuxan only IV at 4...
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