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Type: Posts; User: Jaha

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  1. Re: New Patient appointment at Cleveland Clinic

    She is a very good doctor, one of the best. I was in her capable hands in my worsted of times and she most likely saved my life. You should provide her with any information that is relevant to your...
  2. Thread: Igg

    by Jaha
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    Re: Igg

    Mine keeps dropping and is now at 530 and they say that it is okay to go ahead with my next RTX txs. I have had somewhere around 24 infusions of RTX since 2012 and will be having my next set next...
  3. Re: Wegeners/GPA for 41 years - Transplant for 25 - Having a Relapse

    I am glad to read your update. It sounds like you are on the mend and sometimes that comes in baby steps. I am wishing you all the best for the RTX to kick in ASAP for you. Please take good care of...
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    Re: 1000mg or 2000mg rtx ?

    I am sorry to hear that RTX is not as effective as it should be on you. It seems like a lot of a dosage for a person of your size. I am also having problems with my IgG going low and getting...
  5. Thread: Transplant

    by Jaha
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    27,434

    Re: Transplant

    This is some wonderful news Pete, I hope it keeps going up and up!
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    Re: Prednisone Reduction

    I wishing you both the best for getting things calmed down.
  7. Thread: Transplant

    by Jaha
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    27,434

    Re: Transplant

    Good News my friend, keep up the good work!!!:thumbup:
  8. Thread: Transplant

    by Jaha
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    Re: Transplant

    I'm praying that all will level out for you and you will feel better soon! Please take good care of yourself!
  9. Thread: 20 year old son

    by Jaha
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    Re: 20 year old son

    I'm wishing your son all the best for relief and discovering what is the cause.
  10. Thread: 20 year old son

    by Jaha
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    Re: 20 year old son

    I'm hoping that your son gets some answers for his headaches and night sweats, soon.
  11. Thread: Transplant

    by Jaha
    Replies
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    Re: Transplant

    I'm so happy that you and your wife went on vacation to get away for a bit. It helps to reset your mind and body. I hope things keep getting better day by day for you! Take care!
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    Re: Happy Birthdays Thread

    Happy Birthday to both of you, greatly missed by many!
  13. Re: My Rhumy and I started me on High doses of THC and CBD oil

    Pete, anxiety is on that list and who doesn't have anxiety these days! It's all about the money, once more!😠
  14. Re: My Rhumy and I started me on High doses of THC and CBD oil

    Thank you for sharing your experience with THC and CBD oil, helping you. There still seems to be such a stigma about it's use. I believe that it is much better to use something that is natural, then...
  15. Thread: Transplant

    by Jaha
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    Re: Transplant

    I am wishing you all the best for better results. Please take care of yourself!
  16. Thread: Transplant

    by Jaha
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    27,434

    Re: Transplant

    Pete,
    I am so happy for you and pray for continued improvements everyday. You are a true Warrior! You have been quite brave and patient with all that you have been through. I am wishing you all the...
  17. Thread: Nine years

    by Jaha
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    Nine years

    ​Nine years ago today, (4/24/2010), I had a left lung resection, they took 38 grams, for a better biopsy, prior to that I had an unsuccessful needle biospy. I had been sick for a long while, with one...
  18. Thread: Transplant

    by Jaha
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    Re: Transplant

    Thank you for sharing your experience, this will be beneficial to others. It sounds like you and your Dad, had a lot on you and made it on thru to the rest and healing process. Please take good care...
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    Re: Celebrate how far we have come!

    Drz, I am so glad you came out of your flair still kicking. Like you, I have to sometimes manage my own flairs, not advisable without Dr agreement.I also am at 9 yrs out and I really need to get back...
  20. Thread: Transplant

    by Jaha
    Replies
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    Re: Transplant

    Pete,
    I am so happy that you are doing okay. I know that it has been a long road to get here and you did it. I pray that you and your Dad, get home soon and recover quickly. Please take good care of...
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    Happy New Year to all, just a bit late!!💜

    I'm wishing you all better health for 2019!!
  22. Thread: Eight years later

    by Jaha
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    Re: Eight years later

    Time for an update, oh boy here we go! Well I hope most of you are doing better these days. I notice that there is not a lot of activity on here from some of us oldies. I hope this is a good sign for...
  23. Thread: 7 Years In

    by Jaha
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    Re: 7 Years In

    I am wishing you all the best with your infusion. I'm glad that you are doing pretty well Gunny! It will be good to hear from you again. Stay strong!
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    Re: 13yr daughter has Wegeners

    I am so sorry that your young daughter has this very awful unpredictable disease. Does she see a Wegeners specialist? It does get better with the proper treatments and really good doctors to guide...
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    Re: Happy Birthdays Thread

    Happy Birthday �� Andrew! I hope you have a wonderful!
    Thanks for all you do!!
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