Search:

Type: Posts; User: Masha

Page 1 of 8 1 2 3 4

Search: Search took 0.01 seconds.

  1. Replies
    0
    Views
    57

    No Politics No Stress

    I am glad this is a non political forum. I do not, never have discussed my views with anyone but my husband. But now I have Wegeners which serves a positive purpose here. Whenever the subject...
  2. Thread: Your Thoughts

    by Masha
    Replies
    9
    Views
    122

    Re: Your Thoughts

    Pete, my sedimentation rate is 9. Doc said normal was 0 to 15. My Canca was positive, she said low, results before that 1.4. I never get a negative reading there. All other tests, over a dozen...
  3. Thread: Your Thoughts

    by Masha
    Replies
    9
    Views
    122

    Your Thoughts

    OK, as I have been posting, I have been on a very slow reduction of prednisone. Over the summer I went from 10 to 8. But at 8 my throat, sinus and teeth all went to hell in a hand bag. I had to up...
  4. Re: shankxonline - My path to identify GPA and overcome it

    Hi Lea,
    Welcome to our forum. You will learn a great deal here and find plenty of support.
    Anne is right. If you move this up to New Member, you will get a lot more responses.
    Your question of...
  5. Replies
    961
    Views
    94,275

    Re: pberggren memorial thread

    Oh Sweet Alysia,
    My heart breaks for you. You found love but you didn’t lose it. Phil will always be a part of you. He was right, there is nothing wrong with letting the tears out. Your life...
  6. Replies
    11
    Views
    353

    Re: Imuran Side Effects

    Mattieus,
    Sorry you went through all of that. Just glad you made it to hospital and getting back to normal.
    I am learning that drug treatment, just like this disease varies from person to person....
  7. Replies
    11
    Views
    353

    Re: Imuran Side Effects

    Hi Mattieus,
    I can not take that drug. I was tested and OKíd for it too. Started with one, felt like you described. I increased to two, then contacted my doctor. I should have contacted her...
  8. Replies
    15
    Views
    337

    Re: Methotrexate without Prednisone

    I am with Ed on this. I cannot say it better than he has. It is hard for me to imagine a Wegeners specialist would not start her with prednisone. I donít like the drug, BUT it has been a necessary...
  9. Thread: Transplant

    by Masha
    Replies
    258
    Views
    27,432

    Re: Transplant

    Is the up and down to be expected?
  10. Replies
    17
    Views
    536

    Re: 1000mg or 2000mg rtx ?

    Alysia,
    Thank you for the clear explanation. Wegs is so confusing. My Duke doctor runs a boatload of tests on me. Probably, if I went back and looked Iíd find it. Sometimes I just have burn out....
  11. Thread: Hurricane Dorian

    by Masha
    Replies
    0
    Views
    90

    Hurricane Dorian

    Prayers for all of you in the track of the hurricane.
  12. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Hi City by the Bay,
    Welcome. I once lived in Los Gatos ( many years ago). I went to Stanford for treatment of a different medical issue. After I read your post I googled them and a bit of more...
  13. Replies
    17
    Views
    536

    Re: 1000mg or 2000mg rtx ?

    Alysia, I googled Iig, and with all the information out there I am just as baffled as before I looked.
    Wish I had more knowledge on this subject. What do you think would happen if you went back to...
  14. Thread: Lena's story

    by Masha
    Replies
    12
    Views
    374

    Re: Lena's story

    Hi Lena,
    Welcome! I don’t know if there is much I can add to what has already been said. Like drz I also use the Sinu Pulse machine. It has an attachment for the mouth, which I find helps the...
  15. Thread: Reply to Lena

    by Masha
    Replies
    1
    Views
    91

    Reply to Lena

    Hi Andrew,
    Is there any way we could respond and welcome Lena.
    Thanks,
    Masha
  16. Replies
    139
    Views
    12,648

    Re: Happy Birthdays Thread

    Anne,
    A belated very happy birthday wish. Sounds like you had a very blue day. Are the blueberries in your area large and sweet?
    Whether we celebrate them or not birthdays are grand, because it...
  17. Replies
    7
    Views
    293

    Re: Prednisone Reduction

    Geez-O-Pete! You guys got hit with a double whammy. Stress is hard on GPA, sometimes it just canít be avoided. Moving is brutal, but at least now no worries about maintaining a yard or shoveling...
  18. Replies
    7
    Views
    293

    Re: Prednisone Reduction

    Thanks Pete. It has taken me 2 months to get down 1 1/2 mg without a flare. Any faster and I will be back where I started.
    Sorry to hear you are having a flare. Do you know what brought it on? ...
  19. Replies
    7
    Views
    293

    Prednisone Reduction

    Pete,
    Am looking for the prednisone taper chart you put in a while back.
    Masha
  20. Thread: My GPA story

    by Masha
    Replies
    7
    Views
    317

    Re: My GPA story

    Welcome Rosie,
    So glad you found us. Keep checking in. It is the best way to stay informed.
    It took me over a year of having been diagnosed to find this site. Only three years ago the things you...
  21. Thread: Transplant

    by Masha
    Replies
    258
    Views
    27,432

    Re: Transplant

    Congratulations on your son’s graduation. That would be a happy outing.
    You are always in my prayers. When I read that things aren’t going too well for you, I just don’t know what to say.
    So I’ll...
  22. Re: Wegeners/GPA for 41 years - Transplant for 25 - Having a Relapse

    Hi Kim,
    Welcome. Wow, your Wegeners journey has taken you down a long hard road!
    What you have already done for the nasal problems are all the things I would suggest.
    As far as the Rituxan...
  23. Thread: Newly Diagnosed

    by Masha
    Replies
    26
    Views
    1,204

    Re: Newly Diagnosed

    Donít know why they finally approved it. I am guessing there are questions that qualify you. With Wegeners there are days when some of us just canít move, and at other times it is different. Maybe...
  24. Thread: Newly Diagnosed

    by Masha
    Replies
    26
    Views
    1,204

    Re: Newly Diagnosed

    Sherry, Just had lunch with friends. Their nephew has an autoimmune disease too. He applied for the disability 3 times. He was rejected the first two, but got it on the third try.
    Masha
  25. Thread: Newly Diagnosed

    by Masha
    Replies
    26
    Views
    1,204

    Re: Newly Diagnosed

    Sherry, Regarding your long term disability_ If you qualify for long term disability and you have paid into Social Security for 40 quarters, you are qualified to receive the full amount of SS that...
Results 1 to 25 of 176
Page 1 of 8 1 2 3 4