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Type: Posts; User: JohnL

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  1. Lola - I was giveen an IV of Bicarbonate of soda...

    Lola - I was giveen an IV of Bicarbonate of soda during one of my stays in hospital. It made me
    feel much better and i still take a teaspoon -level- every night. Something about acid build-up
    and...
  2. Thread: Thanks

    by JohnL
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    2,127

    Thanks

    Thanks for the Birthday wishes :) =82!!= never thought I would get this old and fradgile - Doing pretty good tho. In remission and mostly feeling pretty good. Thanks again :)
  3. Thread: marion

    by JohnL
    Replies
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    5,448

    I have excelent health insurance but recently I...

    I have excelent health insurance but recently I ordered cellcept from express scripts and the price came up $966.00 for 3 month supply !!!! I am 81 and retired and can't pay that much so my doc put...
  4. Thread: Cellcept

    by JohnL
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    3,254

    correction ---- 2 at night

    correction ---- 2 at night
  5. Thread: Cellcept

    by JohnL
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    3,254

    To PBerg...I had bad stomach and lower GI...

    To PBerg...I had bad stomach and lower GI problems with the 500 mg tabs, went back to 250 caps - 2 in the morning and 3 at night - that helped a lot.
  6. Thread: Muscles Painful

    by JohnL
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    11,070

    My Doc put me on 400 mg of magnesium ...

    My Doc put me on 400 mg of magnesium /spelling??/ a day for my pains. But I had them before I was diagnosed. You might check it out - its really just a diet supliment
  7. Thread: Cellcept

    by JohnL
    Replies
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    3,254

    That was my co-pay price - $40.00 for THREE...

    That was my co-pay price - $40.00 for THREE months supply. I thought the UK had "free" health care ??
  8. Thread: Cellcept

    by JohnL
    Replies
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    3,254

    Cellcept

    I would advise everyone on Cellcept to check thier insurance !!
    Just went on line to Express Scripts and found the price had jumped from $40.00 to :confused::confused::confused::confused:$966.00...
  9. Thread: Dizzy

    by JohnL
    Replies
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    8,626

    I had one episode stood to quickly and went...

    I had one episode stood to quickly and went answer the door - dropped like sack of potatoes- I was toll it probabally was a blood pressure thing brought on by th meds. I still have to pause when I...
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    I was in remission about 3 years ago and stopped...

    I was in remission about 3 years ago and stopped cytox and pred - lasted over a year then had a flair - ANCA test of 67 - about 6 months ago went into remiss again bust stayed on cellcepy and 10 mg...
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    I am 81 years old - I was dianosed about 6 years...

    I am 81 years old - I was dianosed about 6 years ago. Went into remission once and had a flair-up. I have been on pred and cellcept for over two years.
    I have severe weakness and am short of breath....
  12. Thread: Upgrade

    by JohnL
    Replies
    53
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    12,230

    Please add my thanks Andrew - wish I had this...

    Please add my thanks Andrew - wish I had this site 6 years ago at the onset - might have made it a litttle easier !!
  13. Thread: Severe weakness

    by JohnL
    Replies
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    6,698

    This is to much for an old man like me - Liver ...

    This is to much for an old man like me - Liver and kidney pie - EGAD
  14. Replies
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    I had GI difficulties with the 500MG cellcept...

    I had GI difficulties with the 500MG cellcept tabs - but not with the 250 MG caps - same dose
  15. Thread: Just Diagnosed

    by JohnL
    Replies
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    8,353

    Do any of you take Bi-carb ??? I take every day...

    Do any of you take Bi-carb ??? I take every day to negate the fatigue acids
  16. Thread: New guy

    by JohnL
    Replies
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    1,756

    FOR i HAVE PROMISSESS TO KEEP AND MILES TO GO...

    FOR i HAVE PROMISSESS TO KEEP AND MILES TO GO BEFORE I SLEEEP
  17. Thread: New guy

    by JohnL
    Replies
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    1,756

    Thank you Jen - glad I found this site - makes it...

    Thank you Jen - glad I found this site - makes it a little easier
  18. Thread: Severe weakness

    by JohnL
    Replies
    40
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    6,698

    That Cytoxin is BAD stuff - knocked me for a loop...

    That Cytoxin is BAD stuff - knocked me for a loop - couldn:t even undress without help - Dr put me on cellcept - much better now
  19. Replies
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    I am 81 - diagnosed 6 yrs ago. I was on Cytoxin...

    I am 81 - diagnosed 6 yrs ago. I was on Cytoxin at first but in am now on Cellcept. Did not do to well with 500 Mg tabe but 250 caps i can take with little problems
  20. Thread: New guy

    by JohnL
    Replies
    8
    Views
    1,756

    New guy

    My name is John - I was diagnosed about 6 yeaars ago at age 75 !! Wge is attacking my lungs \about 75% cap. now - My nasel passages and my one kiidny - dont why i only have one = I have been in...
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