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Type: Posts; User: NatriceRomeo

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    Re: Happy Birthdays Thread

    Thank you everyone! You are all so wonderful!
    Natty


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    Re: Transplant

    So happy that you have good news finally! Still thinking of you everyday & follow your recovery.
    Natty


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    Re: Hi everyone

    Sorento, what a terrible story! Please get a second opinion. I do know WG can affect the heart from what my rheumatologist has said it causes congestive heart failure. I think if the Drs could...
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    Re: Just diagnosed from Queensland Australia

    I was diagnosed in Australia when I was a teenager. It took about 3-4 months. It initially manifested with a swollen eye lid. I went to a GP & they told me o should not be so concerned about my...
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    Re: Hello from another new member

    Hi Tricia,
    Iím sorry you are in the club but happy you found this place. The people are so awesome & everyone here has different symptoms of WG but a life time of experience.
    I do hope you start...
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    Re: Transplant

    Oh no! Iím so sad to hear this. Iím hoping for positive news to come. My thoughts are with you. Please keep us updated. We are all cheering for you!


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    Re: Strict Dieting

    Donít be too hard on yourself. Itís ok to fall off the wagon multiple times. Youíre doing great! Youíre trying & thatís what counts. We are all cheering for you! You got this!


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    Re: Transplant

    So glad things are going better. It is a relief you are doing better. Iím still thinking of you!
    Natty


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    Re: Transplant

    Oh no! Please get better soon! Thinking of you!


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    Re: Transplant

    Iím thinking & praying for you & your dad. I hope they give you plenty of pain meds! You have been on my mind all day.


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    Re: Transplant

    I am thinking of you!!


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  12. Thread: Dry cough

    by NatriceRomeo
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    Re: Dry cough

    Hi Alyssa, thank you for your thoughts. I think I am slowly getting better. I did not have blood drawn to see what my ANCA was but yes, the cough and bronch and weight loss were the only things that...
  13. Thread: Leukemia

    by NatriceRomeo
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    Re: Leukemia

    I have had melanoma believed to be from immunosuppressants.


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  14. Thread: Dry cough

    by NatriceRomeo
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    Re: Dry cough

    Hi Alyssa,
    I can very much commiserate with you! I had a couch for several weeks, my PCP was very frustrated with me & to be honest not nice about it either. I had a rheumatologist app a few weeks...
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    Re: Diagnosed December 2018

    Hi Ken,
    I am sorry you have joined the club but welcome! It sounds like you have a good rheumatologist & hopefully things will get better soon.



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    Re: Transplant

    Thinking of you! Hope all goes well!


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    Re: Happy Birthday to Me

    Happy Birthday! Did you have a fab day??


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    Re: Transplant

    Yay! Congratulations! Best Christmas present ever!!


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    Re: New Member - Newly Diagnosed

    Hi Ali,
    It sounds like you had a rough go. Welcome! This is an awesome place to find support.
    How are you feeling now since you started treatment? Are your sinuses and ears any better?
    Natty

    ...
  20. Re: The scariest 14 months of my life and then Wegeners

    Hi Veronica!
    Iím sure itís surreal to have all this happen to you and so quickly! Itís odd-no one understands what your going through & can feel very lonely. Then you found us! Welcome!
    I honestly...
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    Re: Fructured Toe

    Hi Alyssa,
    I know when I break a bone (I u fortunately have broken several in my life) I get nauseous & have the chills. Itís my bodyís reaction I guess. Doesnít matter if I have broken a thumb or...
  22. Re: New Member - two decades of patient experience

    Sorry about that-not sure what happened with my phone! [emoji849]
    Hello Kwnorton000! You and your son have quite the history! I know there is a debate on Facebook about vasculitis being hereditary....
  23. Re: New Member - two decades of patient experience

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    Re: Newly diagnosed and scared

    Hi Yogasloth!
    I can understand how you can feel overwhelmed & think ďwhy meĒ? But to help put this in perspective... I was diagnosed at 17 & am now 40. I think I have lived an outstanding life. Like...
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    Re: Newly diagnosed and scared

    Hi Yogasloth!
    I can understand how you can feel overwhelmed & think ďwhy meĒ? But to help put this in perspective... I was diagnosed at 17 & am now 40. I think I have lived an outstanding life. Like...
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