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  1. Thread: Cold Turkey!!

    by Dorothea
    Replies
    2
    Views
    388

    Cold Turkey!!

    Has anyone ever stopped taking Imuran, cold turkey, and what happened, if anything?

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  2. Thread: Mds!!

    by Dorothea
    Replies
    7
    Views
    1,069

    Re: Mds!!

    Yes, I was on dialysis for 2 months, my kidneys are only at 25%. That was three years ago. That's why I'm on Imuran. I'm afraid now that I have MDS it might set me up for another flare!

    Sent from...
  3. Thread: Mds!!

    by Dorothea
    Replies
    7
    Views
    1,069

    Re: Mds!!

    Have you had a flares?

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  4. Thread: Mds!!

    by Dorothea
    Replies
    7
    Views
    1,069

    Re: Mds!!

    I've been taking 150mgs.

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  5. Thread: Mds!!

    by Dorothea
    Replies
    7
    Views
    1,069

    Mds!!

    I'm a member of this group, I was diagnosed with Wegeners in 2013.
    I was just diagnosed yesterday with MDS(Myelodysplastic Syndromes) it's a disease of the bone marrow. I honestly believe I ended up...
  6. Thread: Leukemia

    by Dorothea
    Replies
    9
    Views
    781

    Leukemia

    Has anyone developed cancer while in remission with Imuran or any immune suppressing drugs?

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  7. Replies
    4
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    686

    Blisters on my index finger!!!

    Has anyone ever have blisters like these with their Wegeners?https://uploads.tapatalk-cdn.com/20180920/382af017b18d973eafbe4ac97809ce43.jpg

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  8. Replies
    6
    Views
    773

    Re: dialysis question

    Hello,
    What percentage of kidney function does he have left? I was on dialysis for 2 months and my kidneys came back to 25% I can live the rest of my life at 25%. If I lose my kidney function I...
  9. Replies
    2
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    822

    Wegeners is back!

    No Immune system and a cold!
    Has anyone had a cold while on immune
    suppressing drugs? I have a cold, What should I expect?
    Thank You!

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  10. Replies
    11
    Views
    2,104

    Re: light's a shining

    Congratulations to you! I'm happy for you!

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  11. Thread: Imuran

    by Dorothea
    Replies
    5
    Views
    784

    Thank you very much to all of you!!! Sent...

    Thank you very much to all of you!!!

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  12. Thread: Imuran

    by Dorothea
    Replies
    5
    Views
    784

    Imuran

    I'll be starting Imuran on January 1st. I was wondering if anyone in our group has ever been on Imuran for suppressing their immune system? If you have can you tell me if it put you in remission....
  13. Replies
    15
    Views
    1,478

    Good luck to you Jaha! How long have you had...

    Good luck to you Jaha! How long have you had Wegeners?
    Dorothea

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  14. Replies
    24
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    2,605

    Poll: O neg. Sent from my XT1575 using Tapatalk

    O neg.

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  15. Replies
    6
    Views
    720

    Thank you gilders!😊 Sent from my XT1575 using...

    Thank you gilders!😊

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  16. Replies
    6
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    720

    Thank you Pete and Kstick😁 Sent from my XT1575...

    Thank you Pete and Kstick😁

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  17. Replies
    6
    Views
    720

    Creatinine level

    When I left the hospital on July 27th my creatinine was at 4.8 now I'm at 3.6, I've been producing more urine. Should I be optimistic that my kidneys are on their way back?
  18. Thread: Dialysis

    by Dorothea
    Replies
    6
    Views
    730

    Hi gilders! Thank you very much for the quick...

    Hi gilders! Thank you very much for the quick response! You're input is very much appreciated. You've been so helpful😁

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  19. Thread: Dialysis

    by Dorothea
    Replies
    6
    Views
    730

    Dear gilders, What is your opinion on...

    Dear gilders,
    What is your opinion on peritoneal dialysis and hemodialysis? My kidney doctor suggested it would be a good option for me, I need to do more research on this. I'm still at 5% kidney...
  20. Thread: Dialysis

    by Dorothea
    Replies
    6
    Views
    730

    Thank you drz.[emoji4] Sent from my XT1575...

    Thank you drz.[emoji4]

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  21. Thread: Dialysis

    by Dorothea
    Replies
    6
    Views
    730

    Dialysis

    Kidney Function
    Has anyone regained kidney function after kidney involvement? My kidneys went down to 5%, on dialysis now for a month, hoping they come back. At what percentage is functional and how...
  22. Thread: Dialysis

    by Dorothea
    Replies
    7
    Views
    3,275

    I spent the whole month of July in the hospital,...

    I spent the whole month of July in the hospital, I have acute renal failure, my kidneys were only functioning at 5%! I'm also getting Rituxin Infusions, my fourth one is on the 10th. I've never been...
  23. Thread: Dialysis

    by Dorothea
    Replies
    7
    Views
    3,275

    Hi gilders, After having dialysis the first time...

    Hi gilders, After having dialysis the first time with Wegeners, did your kidneys come back?

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  24. Thread: Dialysis

    by Dorothea
    Replies
    7
    Views
    3,275

    Dialysis

    Has anyone had to go on dialysis with Wegeners?

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  25. Replies
    7
    Views
    669

    Blood Thinners

    Is anyone on blood thinners with Wegeners?

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