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  1. Thread: Remicade

    by DuaneHart
    Replies
    17
    Views
    4,161

    It was pretty mild involvement, but I was still...

    It was pretty mild involvement, but I was still sick. Any kind of Wegener's is no fun.
  2. Thread: Remicade

    by DuaneHart
    Replies
    17
    Views
    4,161

    They tried Imuran at first but I could not...

    They tried Imuran at first but I could not tolerate it so they started Remicade and things turned around. I'm down to 3mg pred, going down 1 mg every 4 weeks plus the mtx weekly. When I get off the...
  3. Thread: Remicade

    by DuaneHart
    Replies
    17
    Views
    4,161

    I have been on Remicade since August '10 and have...

    I have been on Remicade since August '10 and have had very good luck with it. Wegs is in remission and Crohn's and Ulcerative Colitis are getting there. I have Remicade every 8 weeks, methotrexate...
  4. Thread: News of Jack

    by DuaneHart
    Replies
    1,030
    Views
    159,183

    Good luck Jack! Our thoughts are with you and am...

    Good luck Jack! Our thoughts are with you and am sure everything will work out for the best.
  5. I've been taking mtx for 6-8 months now. I...

    I've been taking mtx for 6-8 months now. I started taking 25 mgs (8 pills) by mouth once weekly. The day after taking them I was totally knocked out---exhausted, ache, felt like I was run over by a...
  6. Replies
    12
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    3,038

    Thank you so much for the alert on the recall! ...

    Thank you so much for the alert on the recall! My mtx luckily was not manufactured by either of the two companies. Thanks again!
  7. Thread: Heel Pain

    by DuaneHart
    Replies
    11
    Views
    3,193

    I have had the heel pain also. It's not under...

    I have had the heel pain also. It's not under the heel but on the back of the heel of both feet. Just touching them just about sends me through the roof. My rhuemy ordered x-rays last week and my...
  8. Replies
    52
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    8,479

    I started at 60mg pred a year and a half ago and...

    I started at 60mg pred a year and a half ago and have been trying to get off it ever since. Last spring I made it to 10mg when my uncerative colitis came out of remission after 13 years. They...
  9. Replies
    65
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    13,900

    I made a couple of shirts from zazzle.com that...

    I made a couple of shirts from zazzle.com that say "BODY BY PREDNISONE" on the front and WWW.VASCULITISFOUNDATION.ORG on the back. I where them to all my doctor appointments at Mayo in Rochester and...
  10. Replies
    27
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    4,416

    I was getting purplish/red spots and blotches on...

    I was getting purplish/red spots and blotches on my legs and abdomen before I was diagnosed with Wegs. I would get the spots and they would be gone in a day or two, before I could get in to see the...
  11. Thread: News of Jack

    by DuaneHart
    Replies
    1,030
    Views
    159,183

    My Gosh, Jack! Maybe some cotton wool,...

    My Gosh, Jack! Maybe some cotton wool, Temurpedic foam and some bubble wrap--in an empty room, of course! Take care!
  12. Replies
    2,669
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    549,862

    Oh, Phil. I am so, so sorry. You and your...

    Oh, Phil. I am so, so sorry. You and your families will be in out thoughts and prayers.
  13. Replies
    2,669
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    549,862

    Hurry up and get better Phil. We're still...

    Hurry up and get better Phil. We're still waiting to meet up with you in Rochester!
  14. Thread: News of Jack

    by DuaneHart
    Replies
    1,030
    Views
    159,183

    Nice to hear you got the cast off, Jack. Now BE...

    Nice to hear you got the cast off, Jack. Now BE CAREFUL!
  15. Glad you have good news, Lisa! I am still...

    Glad you have good news, Lisa! I am still hanging in there. My rhuemy and GI doctors are trying to taper me off the pred, AGAIN! I was down to 10 mg just before Easter and my Ulcerative Colitis...
  16. My docs put me on vitamin d and calcium as soon...

    My docs put me on vitamin d and calcium as soon as I started the pred a year ago. I had a bone density test about 3 months ago and it did show that I am showing some bone loss since the first test...
  17. Thread: News of Jack

    by DuaneHart
    Replies
    1,030
    Views
    159,183

    Jack, it's good to hear you're alright, for the...

    Jack, it's good to hear you're alright, for the most part. Take care!!
  18. Replies
    7
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    2,234

    Hi Beth, I share your misery and hope you are...

    Hi Beth, I share your misery and hope you are feeling better. I was diagnosed in 1996 with IBD, Ulcerative Colitis and Crohns disease. I all went into remission after about a year of prednisone,...
  19. Replies
    45
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    8,204

    I'm doing alright. I did spend a week in the...

    I'm doing alright. I did spend a week in the hospital over Easter though. I had been tapering off the pred from the original 50mg a year ago and was down to 10 mg pred and 15 mg mtx when I started...
  20. Replies
    45
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    8,204

    I sweat so much on the pred that I have to carry...

    I sweat so much on the pred that I have to carry around a washcloth at work just to wipe my face. I am not exagerating--the sweat RUNS out of me. It's diagusting!
  21. Thread: Prednisone

    by DuaneHart
    Replies
    220
    Views
    41,887

    I'm doing okay. I am on the pred taper- down to...

    I'm doing okay. I am on the pred taper- down to 12.5 mg for next 4 weeks then down to 10. I've just started getting another sinus infection so am going to the dr today. I'm still waiting for the...
  22. Thread: Prednisone

    by DuaneHart
    Replies
    220
    Views
    41,887

    We have had the WII Fit for almost a year and now...

    We have had the WII Fit for almost a year and now just bought the WII Fit Plus and really enjoy it. The Wii Fit Plus has alot more aerobic things to do, plus it asks questions after some of the...
  23. Replies
    22
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    3,806

    I go to Mayo Clinic in Rochester, Minnesota and...

    I go to Mayo Clinic in Rochester, Minnesota and also work there. Great place to work and a wonderful clinic and hospitals. I'm very happy with all the doctors I've got--Rhuemy, Cardiologist,...
  24. Replies
    56
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    15,046

    I live in Rochester and sounds like your symtoms...

    I live in Rochester and sounds like your symtoms and mine are very much alike. I also take Symbicort and Albuterol and Fluticasone nasal spray. Prednisone is down to 20mg daily and I take Mtx once...
  25. Thread: up all night

    by DuaneHart
    Replies
    60
    Views
    9,704

    One more note about the sleep study. I also...

    One more note about the sleep study. I also thought that I was up all night with them wiring me up and things, but that is how they get all the measurements for your brain activity, oxygen levels,...
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