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Type: Posts; User: Melly

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    Re: pberggren memorial thread

    I have been away from these forums for a long while now, but I always remember Phil with fondness. He was the very first person to welcome me to this family all those years ago. We talked a bit on...
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    My experience with SGS

    Hey there, just thought I'd share my recent experience. I was diagnosed 10 years ago with this disease at age 19, so I'd like to think I'm no longer a rookie when it comes to this stuff. But for the...
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    Haha Jacquie, that's hilarious. And true! And...

    Haha Jacquie, that's hilarious. And true!

    And Anne, by all accounts I am in remission, but I have never been able to completely get a handle on my sinuses. No one can quite figure out if it is...
  4. Thread: New here

    by Melly
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    Oh my gosh, how horrible to have to deal with so...

    Oh my gosh, how horrible to have to deal with so much at such a young age. Do you know why they repeated the ANCA? Was it just to see if it had decreased/increased or did they think maybe it was a...
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    Thank you both for the info, You guys rock! :D ...

    Thank you both for the info, You guys rock! :D

    Ahh, I can't wait to try it! Seems a bit weird to get all excited about nasal irrigation, eh? Strange times we live in, my friends. Straaange...
  6. Thread: Carrie's Blog

    by Melly
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    Oh my gosh. I just read what you posted under...

    Oh my gosh. I just read what you posted under "the beginning of my journey," and I'm literally in tears. It hits really close to home for me. Our symptoms were really similar. I was coughing up blood...
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    Thanks Jacquie, thanks again. I went ahead and...

    Thanks Jacquie, thanks again. I went ahead and ordered the one you linked. Hopefully it works for me!

    Any idea what the purpose is of the baking soda in the saline water? That stuff is irritating...
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    The plank is a really awesome exercise for your...

    The plank is a really awesome exercise for your abs and core. You basically get into a sort of modified push-up position, and then hold yourself static for as long as you can.

    When you first start...
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    Oh, this is a great idea! I try to get at...

    Oh, this is a great idea!

    I try to get at least 45 minutes of cardio in each day, but I've recently started a strength training program that I do every other day on top of that. Working great so...
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    Oh wow, this sounds like a nightmare. I can't...

    Oh wow, this sounds like a nightmare. I can't imagine that your breath sounds were normal if you have bronchial stenosis. As for correcting the stenosis, don't stress about it, it's actually really...
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    Thank you for the welcome, Michelle! I'm so happy...

    Thank you for the welcome, Michelle! I'm so happy to have found you all. *group hug* Haha

    Jacquie, thank you so much for the recommendation! Is a NeilMed rinse bottle kind of like a Neti Pot? I...
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    Hey Debra! I've been med free since December. No...

    Hey Debra! I've been med free since December. No maintenance meds at this point and it feels great. I know flares are common for us, so it has been kind of a source of anxiety for me. I never had a...
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    Genetics: Strong genetic pre-disposition....

    Genetics: Strong genetic pre-disposition. Maternal grandmother has Grave's Disease, maternal grandfather has psoriasis, maternal uncle has Type 1 Diabetes, my mother has psoriasis, my brother also...
  14. Yikes Pierre, sorry to hear! I hope that your...

    Yikes Pierre, sorry to hear! I hope that your recovery goes smoothly and you get some relief from all the pain in that achilles. I know quite a few people that have torn it and it's nearly impossible...
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    I can't tell you how many times I was...

    I can't tell you how many times I was misdiagnosed. I had symptoms for 5 years and it seemed like I had to progress almost to the point where I was on death's doorstep before someone finally started...
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    Hi Debra, thanks for the welcome! Currently, I'm...

    Hi Debra, thanks for the welcome! Currently, I'm not on any medications. But here are all the medications I've been on at various stages in my treatment for WG: Cytoxan, Rituxan, Arava, prednisone,...
  17. Thread: Protest

    by Melly
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    I went off of my Azathioprine against my doctor's...

    I went off of my Azathioprine against my doctor's advice in December, and I have no regrets. I am not advocating this for you, because I don't know your situation, but it was the right choice for me....
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    First post - Hi from California!

    Hey everyone, I'm Mel from San Diego. I'm 26 years old and was diagnosed at age 19 (early January of '07). I had mainly pulmonary and upper respiratory involvement, but my kidneys were also affected....
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