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Type: Posts; User: DStaelens

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    Re: An interesting twist...

    So an update: Started to feel pretty good around the 8 week mark after the first Rituxan infusion. Feeling almost normal now and am tapering down on the prednisone quite a bit. Went to another...
  2. Re: Tinnitus got significantly worse after 1st Rituxan infusion, thoughts?

    Mine kind of fluctuated when I did the 4 infusions, it was bad after 2 and kind of toned back down after the 3rd. Not saying yours will behave the same way, but I did have a noticeable annoying...
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    Re: An interesting twist...

    Interesting, I had flair ups after sinus surgery and after very bad tooth infection requiring a root canal. I found some more information here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5087233/...
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    Re: An interesting twist...

    Been a couple different types, I was first a welding engineer, currently a computer engineer, with a few different things in between. ;-)
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    Re: An interesting twist...

    Yes, I have completed all 4, the infusion center was allowed to let me in in June whereas I couldn't get in for the biopsy until this month. PR3 was positive and ANCA-C pattern was positive.
    ...
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    An interesting twist...

    A little more back story on the recent diagnosis, due to COVID, NYS lockdowns, etc., the ability to actually perform a biopsy of any sort was delayed until 2 weeks ago. Due to the high concern over...
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    Re: Retuxin infusion

    If they run mine too fast we found I get extremely itchy and a bit of soreness the next day, along with an inability to sleep that night. The sleeplessness might be due to other stuff in the mix...
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    Re: Thankful to find this forum

    Thanks me2, that sounds exciting, will look into that tonight. :-)
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    Re: Thankful to find this forum

    Thanks Pete, from upstate NY between Utica and Syracuse. Getting treated at Upstate medical. They have been fantastic.
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    Re: Thankful to find this forum

    Thanks, and no worries, no offense taken. :-)
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    Thankful to find this forum

    Hey Folks,
    After 2 1/2 years of misdiagnosis, I was diagnosed in February with possible vasculitis, then confirmed for GPA in May. It started with what was thought to be pneumonia, which turned...
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