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Type: Posts; User: John S

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    Re: Flare up and Rituximab route questions

    I am a very satisfied Rituximab patient. At first, I got two infusions of 1000 units each, two weeks apart. Repeated in six months.
    Then it was reduced to one infusion. Repeated in six months.
    The...
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    Re: Coronavirus and GPA

    I got my second dose of Moderna vaccine in January 28th. Had a Rituximab treatment this morning (500 units).
    “I love it when a plan comes together”
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    Re: Coronavirus and GPA

    try Garrett’s inChicago for popcorn. The Garrett’s Mix is addictive.
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    Re: Coronavirus and GPA

    It’s been 2 weeks since my wife and I got the second dose of Moderna vaccine. We have gotten everything via online ordering and curbside delivery for 11 months. We have become used to stores...
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    Re: Coronavirus and GPA

    Any side effects?
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    Re: Coronavirus and GPA

    Yesterday I was a few pounds lighter but back to normal (eating everything in sight).
    After both our first and second doses we were followed up by an after vaccination web site called "V-Safe". It...
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    Re: Coronavirus and GPA

    I was tired all day today. Felt exhausted. I suspect this is from the second dose. I’m perking up now but my appetite is gone. My next Rituximab is at the end of February so it seems that all is...
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    Re: Coronavirus and GPA

    We got our second dose of the Moderna vaccine yesterday. No side effects are apparent.
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    Re: Covid vaccins and WG

    My wife and I get dose #2 of Moderna on Thursday
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    Re: research so far indicates vaccine is safe

    My wife and I have the second dose scheduled for January 28th.
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    Re: Coronavirus and GPA

    For the last 4-5 days I have noticed a bad taste in my mouth and have been smelling strange things. I suspect this is related to my first shot of the Moderna vaccine.
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    Re: Coronavirus and GPA

    I have not any any reaction to the vaccine. My wife has complained everyday about how sore her shoulder is.
    A government web site safe.cdc.gov has contacted us each day to see if we have had any...
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    Re: Coronavirus and GPA

    I had Googled “Loyola COVID vaccine schedule” and it gave me a form to fill out. We got the emails the next day
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    Re: Coronavirus and GPA

    My wife and I received emails from Loyola yesterday morning, inviting us to schedule Covid-19 vaccinations. We had our first dose of the Moderna vaccine by 4:30 PM. Our second dose will be January...
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    Re: Coronavirus and GPA

    CDC update from Saturday

    https://thehill.com/policy/healthcare/531722-cdc-issues-new-guidance-about-vaccinations-for-people-with-underlying
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    Re: Confirmed Diagnosis

    Five years ago, family had gathered at our home a few days before Christmas to celebrate the festivities. I spent most of the time in bed with massive headaches. It got worse in the light so I stayed...
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    Re: Coronavirus and GPA

    Are any of the GPA patients also essential medical workers or in assisted living facilities? They would be the first of us inline for the vaccine.
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    Re: Coronavirus and GPA

    The proof will be in the results. I’m hopeful.
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    Re: Coronavirus and GPA

    thanks. That is informative.
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    Re: Coronavirus and GPA

    Now I’m seeing reports that Rituximab patients can get the vaccine. I sure hope that they make up their minds in the next month.
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    Re: Coronavirus and GPA

    My September infusion was 500 units. My SED rate has been slightly higher than it was under 1000 units. Other than that I have not noticed any difference.
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    Re: Coronavirus and GPA

    I saw a new report yesterday.
    “...However, these vaccines won’t be approved initially for use in people who are immunocompromised. This group, though, could still benefit from widespread...
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    Re: Coronavirus and GPA

    I spoke with Dr Alexandria VillaForte yesterday morning. She told me that all of the vaccines that are being considered in the US are OK for Rituximab users. She did say that if I’m to be vaccinated...
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    Re: Ear, Nose and Eye involvement.

    Early prednisone caused cataracts, that were removed. My eyes used to feel like insects were gnawing on the back of them. I think the Rituxin killed them. My hands had sores all over them, the...
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    Re: Ear, Nose and Eye involvement.

    I am lucky enough to be on Medicare and near great teaching hospitals. I go to Loyola Hospital in Chicago and Cleveland Clinic. Prior to diagnosis I was treated by several specialists, Heart, nose,...
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