Those sound like wegs symptoms. Definitely need to call the doc. Don't wait!
Type: Posts; User: JeanMarie
Those sound like wegs symptoms. Definitely need to call the doc. Don't wait!
and Happy New Year to everyone!
I agree these flares take awhile to get under control - it's a stupid complicated disease. I just wanted to ask, have you been checked for a pulmonary embolism? It won't show on a x-ray.
I hope...
I joined a clinical trial sponsored by the Leukemia & Lymphoma Society. I was eligible because I also have chronic lymphocytic leukemia.(also an auto immune disease) They did give us the results of...
Diagnosed with GPA 8/07. currently in drug free remission.
Chronic Lymphocytic Leukemia 5/09 watch and weight. Going strong!!
This is bad, please don't be offended. To the tune of jingle bells:
You look good
You look good
You look good today
Oh how nice you look so good
Too bad you past away
Hope everyone is well!
Gilders, your stress test sounds awful. I'm so sorry.
Pete, my cath was on March11 & sounds pretty much like yours. They started the iv 2 hrs before & kept it going until I left the hospital. My...
I just stopped by, for the first time in a long while too. Hope everyone is doing well :hug3:
I had my last pred on 7/10/16 after a very slow taper. My last RTX was on 7/1/14. No other drugs since the last pred. So far so good but of course, things can change in a heart beat.
My Opinion...be careful---Goldberg is not an MD
I'm with Pete on this. A second opinion is called for & I've never heard of "stage 4" either. Also, I took a quick search for cellcept & didn't find anything about mental confusion. Of course that...
Hi Everyone,
I haven't posted here in a long while. I found this today on a lymphoma site & it is relevant to us: TruximaTM, the first biosimilar mAb in oncology, granted EU marketing authorisation...
Just saw this today.
2 Treatments, the last 2 years ago.
It works, in remission since the last treatment, currently no other drugs not even pred!
Hope everyone who celebrates it had a Happy...
My kidney doc said back pain wouldn't be wegs--said if in kidney area could be a stone--and of course there's no reason we couldn't get kidney stones, but at least it wouldn't be wegs :smile1: As far...
Hi Susan, The reach email for the Tri State chapter, listed on the foundation's site was: [email protected]. I think they met in Dr. Lebovics office, but I heard they haven't had a meeting in a while....
Good Luck, I hope everything goes well!!!:rolleyes1:
Depends on what's going on. When I was in active treatment (ex. Rituxan) every week or 2. Now, in remission, every 2 mo.
I have kidney involvement. When I was on cytoxin & drinking a lot of water my sodium levels went down. My kidney doc immediately called & said substitute some of that water with gatoraid. Levels went...
I also take coumadin due to DVT & PE also from GPA. Been on it for 6 years. It's about as annoying as pred, but I'm still here. It's amazing what you can get used to!
This is late, I haven't been here for awhile, Happy Birthday to Phil & Blessings & good memories to you, Alisa.
I'm with Max --I'm going to take a hit on this, but I think some of us sorely need a basic ethics course.
Dear Alysia, I know you are still suffering your terrible loss but I am glad you have such sweet memories. Love & prayers for you.
Alysia, Well at least the smoldering wegs is being treated - hopefully the rtx will be kicked to oblivion!!!
Feel Better!
I've had it without any problems. I wasn't aware we shouldn't have it--and truthfully I didn't check much.
I don't think that's it Birdie, but I like it! :rolleyes1:
You made me smile.