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    Re: Diagnosed a year and a half ago

    Welcome to the forum, Randy, and thank you for sharing your story. It is amazing how you diagnosed yourself on you own.
    It is also interesting that you have developped a saddle nose without much...
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    Re: Recent Diagnosis

    Welcome to the forum.
    I hope your rtx treatment went well.
    Please consider that being on high pred can cause us more anger and being more emotional. When you reduce the pred, do it very...
  3. Re: prescription process- the path from the Dr to the Pharmacy

    Like I told my dr.: "I must be healthy in order to be sick".
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    Re: Happy Healthy New Year

    I use this thread to ask how our aussies friends are doing out there with the fires and the heavy smoke... my heart goes out to you, I am worried..... praying for the people and for the animals.
    I...
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    Re: What is the smallest dose of Rituxan?

    @anne, you are right. we had a good discussion about the bactrim, in this thread, at page 4 there is some good info by @me2.
    ...
  6. Re: shankxonline - My path to identify GPA and overcome it

    Hi,
    On 2015 I had a wg flare in my eyes. I caught it "on time" so it was only episcleritis. (Lighter then scleritis).
    Sounds like your wg is active and that you need a stronger med. Mtx is not...
  7. Re: How many got the Wegners or GPA Dx without a bx?

    Hi Brad,
    I got the wg diagnosis without biopsy. 2 nose biopsies turned out false negative. My dr. Made a case consultation about me and got the diagnosis. But I had the classic symptoms of wg -...
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    Re: Happy Healthy New Year

    Thanks, Masha. Healthy New Year, and also Happy New Year. We can be joyful even if we are not healthy.
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    Re: What is the smallest dose of Rituxan?

    Hi Kirk,
    So sorry that your wg is flaring :thumbdn:
    My wg dr. Talked about 500mg as a possibly affective minimum doze. BUT I guess it depends on the patient and his wg. For me 500mg isn't enough....
  10. Thread: Transplant

    by Alysia
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    Re: Transplant

    Thanks for the great update ! Merry Christmas and blessed new year !
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    Re: Happy Birthdays Thread

    Hi Jeto, nice to see you here. So glad you have a work. Are you in Macedonia now ? How is your health ? How is your family ? I pray for you. Thank you for your caring. God bless you.
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    Re: Symptoms DURING remission.

    Hi Kirk,

    I am so sorry you are suffering this much.

    I know 3 weggies who suffer from subglotic stenosis even while their wg is considered to be in remission, up to the point where they need...
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    Re: Split decision on diagnosis

    Welcome to the forum, Aaron,

    Lack of G6PD is not related to WG. My father and my 2 sons have it. They don't have WG. However, there are some medicines which you are not allowed to take, one of...
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    Re: In process of being diagnosed

    Some docs use the "limited GPA" concept when there is no kidneys' involvement. But we all know that WG can be life risking even without kidneys' involvement and that it can spread to more vital...
  15. Thread: 20 year old son

    by Alysia
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    Re: 20 year old son

    Thanks for the update. Sounds like Yosef is in good hands.

    I know few weggies who get Ivig treatment.
    Read here for some explanation
    https://www.webmd.com/a-to-z-guides/immunoglobulin-therapy...
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    Re: Happy Birthdays Thread

    Happy Birthday andrew from pberggren1 and from me. We love you and are grateful to you. Thank you so much for keeping the forum working so well and so long. Words are not enough to express our...
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    Re: In process of being diagnosed

    Welcome to the forum, Lea.

    As far as I know, it takes 6 weeks for mtx to start working. Reducing the pred should be careful and gradual according to your improvements.

    The concept of 'Limited...
  18. Thread: new

    by Alysia
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    Re: new

    Meantime I checked with this lady. She said that now her docs think that after all her subglotic stenosis is not caused by WG but is idiopatic. So although she had the diagnosis of WG for few years,...
  19. Thread: new

    by Alysia
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    Re: new

    Welcome to the forum. I know a lady on facebook who has both WG, MS and few other AI diseases. She is an amazing warrior and writes a blog. Here
    ...
  20. Thread: Your Thoughts

    by Alysia
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    Re: Your Thoughts

    Sorry you had to be addmitted because of sepsis. Sounds tough. Thank God you are back home.
  21. Thread: Igg

    by Alysia
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    Re: Igg

    Thank you for the info. The scale in Israel is different. Here the line of the normal is 737.

    Can you please tell us the name of the shots that you are going to get ?
  22. Thread: 20 year old son

    by Alysia
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    Re: 20 year old son

    So sorry Yosef has a big flare again. I hope that being addmitted, he can get the best care possible. Must be hard to stay in the hospital those days, while we have our holidays.

    What is the...
  23. Re: shankxonline - My path to identify GPA and overcome it

    Sherry, for me it took 2 rounds of rtx (6 months between) and 9 months since I started it, in order to see a real difference.
  24. Thread: Your Thoughts

    by Alysia
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    Re: Your Thoughts

    Hi Masha,

    On the contrary - for me the drop from 100 or 120mg on rtx day to 5mg the day after is too much and in the last years (I am on rtx every 6 months since 2013) I even took 20mg the day...
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    Re: pberggren memorial thread

    Thank you so much my friends, for your caring and kind words. You warm my heart. I love you. Thank you for being here.

    I share here things which I don't share on facebook. I don't want to make...
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