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Type: Posts; User: XnCelt

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    My experience here in Philadelphia, USA is almost...

    My experience here in Philadelphia, USA is almost identical to that of Alysia…my joint pain went away almost immediately too…the Dr said that relief was due to the methyl-prednisone drip…I enjoy the...
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    I just finished my 4 infusions on Friday. No...

    I just finished my 4 infusions on Friday. No side effects. I actually enjoy them.


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    Besides Rituximab every 6 months. This is my...

    Besides Rituximab every 6 months. This is my personal regimen:

    1) 40mg Solgar Full spectrum Curcumin
    2) 325 mg Grape Seed extract
    3) 1000 mg Krill oil
    4)Two 20 minute sessions of guided...
  4. Rochester was a part of my territory as a Pharma...

    Rochester was a part of my territory as a Pharma rep back in the 80's.


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  5. Do I see you're in the Rochester New York area? ...

    Do I see you're in the Rochester New York area?


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  6. First infusion Oct 4 - second infusion Oct 31 -...

    First infusion Oct 4 - second infusion Oct 31 - no side effects…how did yours go?


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    New Member from Philadephia

    Donna,

    Tell me about your diagnosis…were your first and only symptoms in your sinuses? How did your doctors definitively diagnose GPA? ANCA blood tests and biopsy? Do you see Dr Merkel or Dr...
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    winkBack: there may be more but they just haven't...

    winkBack: there may be more but they just haven't found this forum yet.


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    New Member from Philadephia

    Hi Everyone,

    I was diagnosed with GPA in October 2014. I first started noticing mild symptoms about 2 1/2 years ago. The symptoms started to become significantly worse about 2 months ago. Some...
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    I am 64...I saw you said your Dad is 60...did he...

    I am 64...I saw you said your Dad is 60...did he experience symptoms for a long time before getting a diagnosis and treatment? My doctors tell me I got my diagnosis and treatment started early. ...
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    See Granulomatosis With Polyangiitis (GPA)...

    See Granulomatosis With Polyangiitis (GPA)

    NIAID and other components of the National Institutes of Health support
    research on GPA and related forms of vasculitis at medical centers throughout ...
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    So, Rose your masses started to shrink within...

    So, Rose your masses started to shrink within days?...how was that confirmed? Did you have a repeat CT scan that quickly? Drs at the UPenn GPA Center told me that it takes a couple of months for...
  13. Thread: Eastern USA?

    by XnCelt
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    I am in Yardley, PA just north of Phillie...how...

    I am in Yardley, PA just north of Phillie...how about you?
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    I live in Bucks County. I have been getting...

    I live in Bucks County. I have been getting great care at the Philadelphia Vets Hospital where UPenn Rheumatology Fellow practice. Dr Merkel and Dr Sreih from the UPenn GPA Expertise center consult...
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