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Type: Posts; User: Carol

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  1. Thread: Probiotics

    by Carol
    Replies
    7
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    1,797

    Since my recent flare Probiotics is a thing I...

    Since my recent flare Probiotics is a thing I have decided to try. I'm just taking Yakult but will try the tablets when I run out of them. Don't know if it's helping but can't do any harm or CAN...
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    3,347

    Used Herbs to get off Pred I tried to go off the...

    Used Herbs to get off Pred
    I tried to go off the last 5mg over winter and just couldn't so left it until it was warmer. I then went to a compounding herbalist - well known - not obscure - and told...
  3. Replies
    28
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    6,558

    After bing sick for about an month and being on...

    After bing sick for about an month and being on Imuran, Pred and Bactrim I lost feeling in both my arms within about 1/2 an hour and had to then start on cyclophoamate? infusions. I also lost sight...
  4. Replies
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    1,826

    First Flare after 6 years .....why???

    I'm just having my first flare after my initial diagnosis 6 years ago. I'm very emotional as at my last 6 month check I virtually told my rheumy that I didn't need him any more. I'm eating humble...
  5. Replies
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    17,398

    meditation

    Hi Lilly I am the one who spoke about Meditation ages ago. there are many meditation CD's around - you just put them on and listen. Kelly Howell is well know for her meditations - but you need to use...
  6. Thread: Nocturnal

    by Carol
    Replies
    13
    Views
    3,607

    yes I was and am still occasionally nocturnal....

    yes I was and am still occasionally nocturnal. Somewhere I read that our sleep patterns go in 20 min cycles. So I would get up and generally about 40 mins later I would feel sleepy. I learned to...
  7. Thread: Nasal discharge

    by Carol
    Replies
    69
    Views
    19,507

    boiled water not distilled water

    Hello Yes the rinses are just so good as they helped me remove the crusting down the back of my throat. I know this sounds disgusting but we're all Weggies or their families here so it's OK. I was...
  8. Thread: Neuropathy

    by Carol
    Replies
    11
    Views
    10,110

    Nerve support Formula from US

    I did alot of googling when I had nerve damage from the Wegs and the only thing that seemed to come up was WSN Nerve support Formula from the US. I took this on and off for about 12 months. My feet...
  9. Replies
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    1,304

    Update on Carol - got Wegs May 2008

    I haven't been on this site for ages so just letting you know how well I am now 5 years later. I am only on Bactrim twice a week now and do most things normally. I turned 60 yesterday and had a...
  10. Hello, I'm Carol and I got Wegs 5 years ago. I've...

    Hello, I'm Carol and I got Wegs 5 years ago. I've just turned 60 YESTERDAY and am fortunately quite well. I can highly recommend meditation as part of your healing process. There are many guided...
  11. Replies
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    28,376

    the way I got off Pred

    After a failed attempt these are the things I did to get off Pred. It may sound a bit whacky but it worked like a breeze.
    1. I waited until the weather was warm
    2. Every day I spoke to my adrenals...
  12. Thread: thyroid nodule

    by Carol
    Replies
    8
    Views
    2,758

    I too have just found some nodules on my thyroid....

    I too have just found some nodules on my thyroid. I've done some googling and it seems it can be part of Wegs. Any info what others have found would be great.
    Carol from Australia
  13. Thread: Shingles again

    by Carol
    Replies
    2
    Views
    1,239

    Shingles again

    Just when I thought everything was really going well, I had some big days and increased levels of stress (after I put my hand up to go President of a Club and had to face the AGM) I came down with...
  14. Replies
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    4,294

    Uggh boots have been wonderful for me here in...

    Uggh boots have been wonderful for me here in Australia. They are genuine lambskin lined - beware of fakes made out of synthetic. The lambskin is very soft and easy on feet but you get into bad...
  15. Quite well now - why did I get it in the first place?

    I hardly ever go on this site now because I am so well after being diagnosed 4 years ago, or was it 5????
    I'm still on 3 Imuran a day and Bactim 3 times a week. It seems to work very well. A big...
  16. Thread: New here...

    by Carol
    Replies
    27
    Views
    5,925

    Have your heard about "Nerve Support formula" ?

    I'm from Australia and I import from USA Nerve Support Formula for my neuropathy. It's a form of Vit B. You have to take quite a few a day - I take them for a few months then get tired of them as it...
  17. Replies
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    14,901

    Don't be embarassed to ask - it's OK

    Maybe the Neilmed bottle would give you just a little more pressure than a neti pot. Half way through the rinse I would actually draw the water back down the back of my throat as the crusting was on...
  18. Thread: blurry vision

    by Carol
    Replies
    153
    Views
    24,542

    Pred my friend

    Sometimes you just have to think of pred as your friend. I knew that at some stage I would be off it( and I am) I allways blessed my medication, feeling grateful that it was available to me and the...
  19. has anyone tried Neuroveen(homeopathic) for nerve damage

    The nerve damage in my feet is very painful at the moment and was researching on the net and saw Neuroveen a homeopathic treatment. Has anyone tried this or heard about it. i'd have to import it into...
  20. Replies
    26
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    4,561

    Organ and tissue donation???

    I have registered as an oran donor but now I have Wegeners are any of my parts OK to donate? Just think it would easier on family if I found this out. I will contact the organ donor organisation too...
  21. Have tried WSN Nerve Support formula

    Hi Sanje
    Yes I tried Nerve Support Formula which is 1000mg Methylcobalamin B - 12 with Thiamine 103mg. I ordered it through USA because it was not available in Australia. I do think it helped and...
  22. How have others found Lyrica (Pregalbin) - does it Heal or just take away the pain

    The nerve damage in my feet seemed to have stopped improving and have recently felt numb on the ball of my foot. Can you tell me if Lyrica actually healed your nerve damage or just took away the...
  23. Replies
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    15,849

    Bactrim 3 times a week

    I take bactrim DS three times a week. I've been on that for 2 1/2 years now. I seem to tolerate it well which surprises me. Carol
  24. Hi elephant, yes I had terrible sinuses to begin...

    Hi elephant, yes I had terrible sinuses to begin with, bleeding, caking, build up in the back of my throat etc BUT they are so good now except for a little bleeding.In fact they are the best they...
  25. Replies
    33
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    5,747

    magnesium for cramps

    I did a bit of research and came up with Magnesium for cramps. I started taking it and I'm sure it helped. Then I had to start taking Calcium so one of the calcium tablets have the magnesium added so...
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