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  1. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    Hey guys, it's Beckie, Jack's daughter again. ...

    Hey guys, it's Beckie, Jack's daughter again.

    Me and the rest of Jack's family can not thank you enough for all your kind words and condolences, we appreciate them ever so much. We are pleased...
  2. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    Jack

    Sorry to have to now tell you all this but Jack sadly died on Friday 23rd September 2011 at 11.05pm UK time. Things started to go badly wrong on Wednesday, he had been saying that his throat was...
  3. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    More News Of Jack.

    Hey guys, itís Beckie, Jackís daughter with an update on how he is doing. Sorry for not updating you sooner but life has been pretty hectic!

    After the docís swinging one way and then the other...
  4. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    No time to go into detail - I'm only home for a...

    No time to go into detail - I'm only home for a few hours and I'm really not feeling too well today.

    I am in a thorough state of confusion! Docs have had their multi-disciplinary meeting about my...
  5. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    I'm still here! :wink1: My previous post was a...

    I'm still here! :wink1:

    My previous post was a bit blunt so I'll tell you what I know, which is very little. But first of all, thanks to everyone who has written or posted for your kind words,...
  6. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    I'll come straight to the point in my usual...

    I'll come straight to the point in my usual manner -

    It seems that the reason for my recent slide in health is because I have Lung Cancer.
    Not much they can do about it I'm afraid so that's the...
  7. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    Thanks for all the messages of support, I'm sure...

    Thanks for all the messages of support, I'm sure you will understand if I don't reply just at the moment.
    Feeling rough all day every day at the moment so may have to consider getting myself...
  8. Replies
    5
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    1,749

    If you don't take something to protect your gut...

    If you don't take something to protect your gut from all the medication you will wreck it. I take Lansoprazole and can't manage without it. After 25 years of toxic drug taking, my stomach is very...
  9. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    Honestly, you could not make it up and be...

    Honestly, you could not make it up and be believed!

    It seems that my hunch that all my recent problems might be heart related and not due to any infection were correct and the ECG that I had...
  10. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    Not posting much at the moment because I really...

    Not posting much at the moment because I really have been feeling very rough! So glad that I have the stair lift because it is even quite an effort to move from one room to another at the moment. It...
  11. Replies
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    2,027

    That is one hell of a bumpy ride John and the...

    That is one hell of a bumpy ride John and the rest of your family are on, I just hope that the smoother bits start to last longer. I'm sorry that the situation can also bring out both the best and...
  12. Thread: feel so unwell

    by Jack
    Replies
    38
    Views
    2,980

    It sounds very much like a Wegener's flare to me...

    It sounds very much like a Wegener's flare to me and if this is the case no amount of pain suppression is going to be of much use. If not treated, it will get worse.

    My own first symptoms occurred...
  13. Thread: My son Andrew

    by Jack
    Replies
    6
    Views
    1,062

    6 years on Cyclophosphamide is criminal! 6 months...

    6 years on Cyclophosphamide is criminal! 6 months is the recommended target.

    It sounds like your son desperately needs to consult a Wegener's specialist if that is not already the case and it does...
  14. Thread: swellings

    by Jack
    Replies
    6
    Views
    835

    Sorry, but it is sounding a bit Wegener's related...

    Sorry, but it is sounding a bit Wegener's related and the sooner you act the easier it will be to deal with if this is the case. If you need more Pred, then that's just the way it has to be.
  15. Replies
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    It would depend on how well the control of your...

    It would depend on how well the control of your Wegs symptoms seemed to be. If it appears to have been knocked on the head, then get off the ctx and just monitor closely. You can always start it up...
  16. Thread: swellings

    by Jack
    Replies
    6
    Views
    835

    I would hesitate before deciding that they are...

    I would hesitate before deciding that they are not associated with Wegener's, I find that it is best to assume that things like this are connected unless proved otherwise. Remember that even the...
  17. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    If I continue to feel as crap as I did this...

    If I continue to feel as crap as I did this morning I won't be going anywhere.

    I started to really slide yesterday so got another prescription for Cipro since this seems to have been most...
  18. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    You are all coming at this from the logical...

    You are all coming at this from the logical standpoint and I can't fault your opinions. However, I'm coming from my position of never having to ask for help with anything and feeling guilty about it...
  19. Replies
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    For what it is worth, my experience was that Wegs...

    For what it is worth, my experience was that Wegs joint pain was there all the time, but gave the impression that if you could just find the right position to lay in it would go away. No such...
  20. Thread: News of Jack

    by Jack
    Replies
    1,030
    Views
    70,304

    My sister has just given me a dilemma over my...

    My sister has just given me a dilemma over my next stay with her while wife and children go off on holiday in a couple of weeks time.

    Because I have not been too well lately and am still fighting...
  21. Replies
    12
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    1,266

    It is Strother Martin. ;)

    It is Strother Martin. ;)
  22. Replies
    27
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    3,060

    As far as I'm aware, Pred has no substitute other...

    As far as I'm aware, Pred has no substitute other than steroids in other forms. It would be great if you could get off them because the long term consequences of their side effects are so bad, but if...
  23. Replies
    12
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    1,266

    I would have expected both rib and toe to be the...

    I would have expected both rib and toe to be the subjects of general discussion with your docs, but neither are normally treated so that may be the reason why no advice was given.
    ...
  24. Replies
    46
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    3,502

    Agree with Sangye. I have Googled all mine...

    Agree with Sangye.
    I have Googled all mine against Wegener's and checked out the research papers they have written or that their work is mentioned in. I'm lucky enough to be close to a Vasculitis...
  25. Thread: Happy Pills?

    by Jack
    Replies
    16
    Views
    1,563

    Since I am now on this Virtual Hospital Ward I...

    Since I am now on this Virtual Hospital Ward I think I'll start by discussing it with the Matron when I next see her. I have an appointment during the next week or so - must check when it is. ;)
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