In early September I had two massive nose bleeds, it streamed out like a faucet. It scared me really bad. The first time I went to Urgent Care and they packed it, had to stay there for over an hour....
Type: Posts; User: Dorothea
In early September I had two massive nose bleeds, it streamed out like a faucet. It scared me really bad. The first time I went to Urgent Care and they packed it, had to stay there for over an hour....
Has anyone ever gotten sick after getting Retuxin?
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Good luck to you too!! I will be getting Retuxin every 6 months. I hope all is fine with you now! Be safe!!
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This time Wegeners didn't go after my kidneys, they do believe it is Wegeners. I was supposed to start Retuxin treatments before this happened, that will be the next step!! Thank you for your input!!...
Thank you for your response! Have a Happy 4Th!!
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I'm in the hospital, Thursday morning I coughed up blood. Dr. sent me in for blood work and a cat scan. I was admitted and had another procedure where they inject ink into your lungs and scan them...
Has anyone ever stopped taking Imuran, cold turkey, and what happened, if anything?
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Yes, I was on dialysis for 2 months, my kidneys are only at 25%. That was three years ago. That's why I'm on Imuran. I'm afraid now that I have MDS it might set me up for another flare!
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Have you had a flares?
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I've been taking 150mgs.
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I'm a member of this group, I was diagnosed with Wegeners in 2013.
I was just diagnosed yesterday with MDS(Myelodysplastic Syndromes) it's a disease of the bone marrow. I honestly believe I ended up...
Has anyone developed cancer while in remission with Imuran or any immune suppressing drugs?
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Has anyone ever have blisters like these with their Wegeners?https://uploads.tapatalk-cdn.com/20180920/382af017b18d973eafbe4ac97809ce43.jpg
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Hello,
What percentage of kidney function does he have left? I was on dialysis for 2 months and my kidneys came back to 25% I can live the rest of my life at 25%. If I lose my kidney function I...
No Immune system and a cold!
Has anyone had a cold while on immune
suppressing drugs? I have a cold, What should I expect?
Thank You!
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Congratulations to you! I'm happy for you!
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Thank you very much to all of you!!!
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I'll be starting Imuran on January 1st. I was wondering if anyone in our group has ever been on Imuran for suppressing their immune system? If you have can you tell me if it put you in remission....
Good luck to you Jaha! How long have you had Wegeners?
Dorothea
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O neg.
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Thank you gilders!😊
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Thank you Pete and Kstick😁
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When I left the hospital on July 27th my creatinine was at 4.8 now I'm at 3.6, I've been producing more urine. Should I be optimistic that my kidneys are on their way back?
Hi gilders! Thank you very much for the quick response! You're input is very much appreciated. You've been so helpful😁
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Dear gilders,
What is your opinion on peritoneal dialysis and hemodialysis? My kidney doctor suggested it would be a good option for me, I need to do more research on this. I'm still at 5% kidney...