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Type: Posts; User: Marius

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    Tom, my humble opinion is that your doctor is...

    Tom, my humble opinion is that your doctor is right. The problem is that a sudden flare (like you had already!) can be very damaging and hard to bring back under control - if at all. A reasonably low...
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    My Rheumatologist is also of the opinion that as...

    My Rheumatologist is also of the opinion that as long as I tolerate the meds well I should stay on them. He says to take a chance and face a full blown flare is not worth it.
  3. I'm also getting this - not very frequent though....

    I'm also getting this - not very frequent though. Normally I'm just glad that it did not turn out to be a full blown cold which I had only once since diagnosed end 2012. I figure this as my body...
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    Has anybody tried the Banting diet? It is a...

    Has anybody tried the Banting diet? It is a low-carbohydrate, high-fat (LCHF) diet.
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    Sticky: FN van Zyl Pretoria, South Africa Rheumatologist

    FN van Zyl
    Pretoria, South Africa
    Rheumatologist
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    My ENT told me because of all the damage caused...

    My ENT told me because of all the damage caused in my sinuses before diagnoses, it will never be normal again. So he reasons that I will always have a little (?) pain and "issues going on" up in my...
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    Alysia, as you are always there for everyone...

    Alysia, as you are always there for everyone else, you are now in our thoughts and prayers.
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    Also no saddle nose here yet. I have basically...

    Also no saddle nose here yet. I have basically only sinus involvement, diagnosed Oct '13 and still on Mtx and 10mg preds at the moment. Still have sinus issues like crustiness and bleeding sometimes,...
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    I have issues with my eyes too, but it actually...

    I have issues with my eyes too, but it actually started before I took any meds. After diagnosis and on 40mg prednisone it was a little better but still had double/blurry vision and a feeling of...
  10. Thread: Saddle-nose

    by Marius
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    My nose is acting up the same way! Oh no, does...

    My nose is acting up the same way! Oh no, does this mean the meds are not working properly and a collapse is eminent?
  11. Thread: hi from MA

    by Marius
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    Hi Dina, welcome to the forum. I'm new myself and...

    Hi Dina, welcome to the forum. I'm new myself and are still learning a lot from this forum. There is so much info here I think it will take me quite a while to go through all the the threads and...
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    Thank you all for the usefull information...

    Thank you all for the usefull information sharing, and Rose for replying just over the hill from Johannesburg! Witbank is about 140Km from Johannesburg so to travel there is not that much of a...
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    Hi all Thank you so much for welcoming me! It...

    Hi all

    Thank you so much for welcoming me! It feels great to not be alone out there anymore. The doctors made such a fuss about the rearity of this disease that I was left feeling all alone and...
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    Hello - Another one from South Africa

    Hi all, My name is Marius and I'm from a smallish city called Witbank in South Africa. My story started about 16 months ago when I started having all kind of muscle ache's and pains. At first I...
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