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Type: Posts; User: hellojulie

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    Re: Lung nodules

    I had lung nodules when I was first diagnosed, and they were a part of the diagnosis. They disappeared very quickly after my treatments of prednisone and other meds were administered. No problems...
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    Re: Anyone have the same lung problem?

    Lilly, it is indeed lovely to be getting to know you! I have been hoping for a correspondence with someone who is about my level of the disease, and you are such a nice person to boot! Actually I...
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    Re: Anyone have the same lung problem?

    Hi Lilly -- be sure to get the test for flu (nose swabs)-- I never did feel like I had it, but the test showed Type A! I mean, I wasn't down with fevers except twice, briefly. I still had an...
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    Re: Anyone have the same lung problem?

    Hello Lilly, I was diagnosed in August 2017, had the initial preds and apheresis and retuxan, started cellcept, but went into a flare anyway about a month after the last retuxan infusion - rheumy...
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    Re: pberggren memorial thread

    Will you ever see this post? This love story, this wonderful love story, is what I am living on these days. Is there a way to see the pictures? Is it my computer? All I get is a little black box...
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    Re: Wegeners and Kidneys

    Yes, I will do that. Thank you for the advice about being patient. I have been walking with my husband, but we just started this week. And I'm so tired when we get back (half a mile each time,...
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    Re: Wegeners and Kidneys

    Thank you ALL for taking the time to write. (I did a search for "depression.")
    I feel very depressed with this fatigue! I am nearly always encouraged by the grandkids, who live next door, coming...
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    Re: I'm hellojulie and this is My Story

    Thank you for your welcome, and your reply about fatigue. What are your medications? (or can I ask that?!?) Do you have serious vasculitis? (I'm told that Wegener's IS vasculitis, but my Wegs led...
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    Re: I'm hellojulie and this is My Story

    thank you!
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    Re: I'm hellojulie and this is My Story

    Thank you, a lot. Fatigue is a big problem right now. I am in bed a lot the past week and think I may be having a flare. Seeing rheum doc next week but will call before then. I always feel better...
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    I'm hellojulie and this is My Story

    I'm 73, married 46 years, 11 grandchildren. I was active, and in good health, up until May of 2017. I felt (I remember this distinctly) a sudden plugging of both ears, as I was driving. I thought...
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