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Hi Russ, I don't know what the number should be. My ENT told me that I needed to have a B cell test after I completed my RTX therapy to make sure they have been eradicated. Then six months out from...

Hi Jacquie, I have been trying to diet too. I bought the Grain Brian when it first came out. I also have a few of Dr Hyman books. When I fall off the healthy eating wagon I feel it. I had always...

Lily is in Mobile. I am sure she has resources. If you can get medical care in P'cola there is a doc there that sees wegeners. Ask Jolinda. I have family in Foley and will be there in two weeks. I am...

So sad. I am speechless after reading Michelle's post. My prayers to you Lenox.

Hi Shawn, welcome to the forum. This disease takes us on quite a journey. The support and understanding that you will find here is unsurpassed! I hope you start to feel better soon. It is hard to be...

Hi I was just diagnosed with a compression fracture of L1 and L 2 . I was not doing anything more strenuous than yoga and weeding my garden. I was hoping to be able to get my body moving and that is...

Andrew, I went on a motorcycle rally with a friend who is profoundly deaf. After the ride there was a rock concert. My friend walked up to the speakers and put his ear up against it. He made quite an...

I recently had a reiki treatment and was told I need to express my creative side . I asked if painting the kitchen counted, NOT. So I bought acrylic paint and a few terracotta pots and will paint...

My heart aches for you. I am sending prayers for Patch and you.

I beat the Achilles tendon tear last year. Limped for months! I beat wegs and have been working in my garden and going to Yoga. Unfortunately the prednisone has won a minor battle and I have a stress...

All visitors welcome here.

Sending prayers as you work through this time. You are amazing and strong!

I hope you get good news.

Sheldon is that you? Sorry couldn't resist.

The values assigned to each measure vary from not only country to country but from hospital to hospital in the same local. I thought I would chart my labs but it would make no sense since the ranges...

Your son is a soldier? Oh I so worry about you and the news I hear. How is your headache today?

I took the methotrexate by injection and I avoided the nausea that some people get. The folic acid will definitely help prevent hair loss. You might need something like prilosec if your stomach is...

Oh dang! It just doesn't end. I hope that you have some answers and can get things under control. You deserve a break. Sending well wishes all the way from the other coast.

Dr Lebovics is listed on the VF consultant page.Do you need his phone number? His office is by Columbus Circle.

Happy birthday.

The Dr wanted to check all bases including my kidneys. Wegeners can be insidious and destroy other organs before we realize there is a serious problem. On my first visit to Dr Lebovics he wanted to...

H,I see the same ENT as you do. He has always called me back to answer any questions. I too have frequent pain. I guess from all the damage done. The weather also affects my sinuses. The wind,rain...

Hi, there is Dr Lebovics an ENT on West 59th and a rhuemy, Dr Spiera . If you are in NYC these are the guys to see. You can read all about them on the website Vacsulitis Foundation. My disease is...

I am so sorry that you are going through such a rough time. I am thinking of you, sending well wishes, prayers and belated Happy birthday.

I am glad that you are back. I was thinking of you last night and planned to get on the forum first thing this morning. And here you are. Keep on healing!