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  1. hi Deb even though I've not posted for a while I...

    hi Deb even though I've not posted for a while I pop in every now and then to see how everyone is.i've had a few problems over the last few years but i'm hanging on in there.nice to here from you.
    ...
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    this treatment for MS entails destroying the...

    this treatment for MS entails destroying the immune system with chemo then introducing a new immune system obtained from stem cells.it's like reformatting your computer after getting a virus.maybe at...
  3. I've managed to post it now but cheers Andrew

    I've managed to post it now but cheers Andrew
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    something for the future

    Breakthrough treatment for MS patient - BBC News
  5. http://www.facebook.com/dialog/feed?app_id=58567469885&redirect_uri=http%3A%2F%2F www.

    could this be good for us at some point in the future?
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    I came off pred in may of this year after being...

    I came off pred in may of this year after being on it for seven years.this was my second attempt after failing last year.my starting point was 5mg,which I'd been on for a year,and reduced by 1mg a...
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    so sorry to hear of Phils passing.i remember when...

    so sorry to hear of Phils passing.i remember when he joined the group back in 2009.there weren't many of us on here then and he made an immediate impact with his wit and wisdom.be at peace Phil.
    John
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    I've experienced the same problem,in fact I've...

    I've experienced the same problem,in fact I've got a large scab on my shin at the moment from a slight knock from about 4 weeks ago.i was on pred for 7 years before finally getting of it at the end...
  9. Thread: new meds

    by crackers
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    I've been on cellcept,on the same dosage as...

    I've been on cellcept,on the same dosage as yourself,for the last seven years without any problems.i hope it works out for you.
    john.
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    hi Deb over here in the UK a slight hiccup means...

    hi Deb
    over here in the UK a slight hiccup means a small problem.i started on 3 grams but developed pneumonia because of it.i came of it for a while then restarted on 1 gram which gradually...
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    I've been on cellcept for seven years now and...

    I've been on cellcept for seven years now and except for a slight hiccup at the start,i was started on too high a dose,i've been fine and it's worked well for me.i'm currently on 2 grams a day.i hope...
  12. Thread: My dog Patch

    by crackers
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    our thoughts are with you Sangye ...

    our thoughts are with you Sangye
    John.
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    Hi Eamick I've been on 2 grams a day of...

    Hi Eamick I've been on 2 grams a day of mycophenolate for 7 years now.it's certainly been beneficial for me but as for getting off it I don't know.your immune system would have to return to normal...
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    it's been a long time between posts my friend.i...

    it's been a long time between posts my friend.i hope you are well.
    john.
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    everything comes to she who waits.even wisdom....

    everything comes to she who waits.even wisdom.
    john.
  16. Thread: CellCept

    by crackers
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    1,066

    cellcept suppresses the immune system.it was...

    cellcept suppresses the immune system.it was initially designed for transplant patients to stop the rejection of the transplanted organ.i would consult your rheumy before stopping as you may unleash...
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    since my failed attempt to get off pred...

    since my failed attempt to get off pred completely,i got down to 1mg then hit a wall,the night sweats have returned and I'm having trouble sleeping.it was a cold day today here in Liverpool but at...
  18. Thread: Double Vision

    by crackers
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    I had an episode of double vision 3 or 4 years...

    I had an episode of double vision 3 or 4 years ago which lasts for about 3 weeks.i saw the consultant at the eye hospital and he ran numerous tests but could not find any abnormalities.he told me he...
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    my washing regimen is the same now as it was...

    my washing regimen is the same now as it was before WG and i don't use any hand sanitizers or body scrubs.i have grand kids who crawl all over me and kiss me on the lips.i have two dogs,who also kiss...
  20. thanks Pete I hope you're right. ...

    thanks Pete I hope you're right.
    john.
  21. well my quest to be pred free in the new year has...

    well my quest to be pred free in the new year has hit a set back.i've been on 1mg for the last ten days but all the old symptoms are starting to rear their ugly heads.severe fatigue,muscle and joint...
  22. it certainly has been a long time but I can't...

    it certainly has been a long time but I can't think of a better way to celebrate the new year.
  23. thanks Phil.

    thanks Phil.
  24. after having been on pred for nearly 7 years i'm...

    after having been on pred for nearly 7 years i'm finally tapering off.i got down to 5mg and was on that for a year but now am tapering 1mg a month.i'm now down to 2 so by the end of the year I will...
  25. Thread: AL

    by crackers
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    they are, and always will be, missed by their...

    they are, and always will be, missed by their families and all of us but their wit,wisdom and memory will live on and help and inspire present and future members of our wegs family.i feel privileged...
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